My trip to #stlouis for my #officialdiagnosis of #lipedema caught me completely off guard with an ex

My trip to #stlouis for my #officialdiagnosis of #lipedema caught me completely off guard with an extra diagnosis of #secondarylymphedema and #hypermobileehlersdanlossyndrome
I’m still processing it all, and angry also. Angry that Doctor’s assume because you’re overweight that it’s because you’re just fat. If someone is overweight it’s not always because they overeat and aren’t active. There are reasons such as with me! I had no idea I’m holding 30lbs of fluid that isn’t supposed be be there! I was ignorant to thinking I had #lymphedema because my lower legs aren’t affected. I never knew I could have this only in my thighs and trunk. But if I don’t take care of it now, it will progress to my lower legs, and get worse.
The plan is to decongest this fluid in my thighs and trunk with #manuallymphaticdrainage massage, #graduatedcompression knee highs and a custom #compression Capri fitted to my measurements AFTER getting rid of the fluid. Then coming back to St. Louis to talk about processing through my insurance for #lipedemaliposuction

I’m grateful to have found specialists that are caring and knowledgeable about these diseases and other friends here on social media like @palegingerpear @whitepeachlove and others. Had I never began a social media page, I never would have known about why my body is how it is. ❤️ (at Fenton, Missouri)
https://www.instagram.com/p/B84l9kpgr_H/?igshid=iqfh7pilgys1