the-sunshine-cult:jenroses:elierlick:This is it See also autismSee also Ehlers Danlos syndrome &

the-sunshine-cult:

jenroses:

elierlick:

This is it

See also autism
See also Ehlers Danlos syndrome & Fibromyalgia

It’s amazing how much more visible things become when you accept that they exist.

It’s amazing how much more visible things become when you accept that they exist.

Definitely on the EDS thing. But it’s really worth pointing out that most people who were diagnosed with fibromyalgia are later correctly diagnosed with something else after testing.

If you have a fibromyalgia diagnosis, you probably actually have EDS, lupus, jra, psoriatic arthritis or something else. I’m not even being ableist or rude, it’s literally what Penn State and John Hopkins told me and my family after I realized that I knew 27 people and were related to 9 people who had their diagnosis fixed (specifically my mom, sister, brother, neice, nephew, several cousins and myself)

Fibromyalgia is often a placeholder diagnosis for when your doctor doesn’t know what to say and has no idea what tests to run. While it is a real disorder, it’s way overdiagnosed, and probably 80% of people who think they have it and therefore have very few treatment options actually do have treatments available for what is actually going on.

If you believe you have fibromyalgia, you have to get a second opinion from a specialist, like a geneticist or a rheumatologist who specializes in autoimmune and genetic disorders. For my family, we realized that we all have EDS and some have psoriatic arthritis. The change in diagnosis and treatment let my mom and sister go back to work for the first time in years and got my twin cousins’ off opiates and out of leg braces. ‍♂️