#juvenile arthritis
K so I lied. I do have ONE art work that was supposed to be posted July 1st and I did it about a month ago. So Happy Juvenile Arthritis Awareness Month!
About JA
I was 2 when I was diagnosed and am still dealing with it 14 years later. It was an obscure disease when I was diagnosed and most people still don’t know it exists. So always remember, Kids Get Arthritis Too.
- It is an auto immune disease so the problem is your own body attacking itself
- It is only recently that it is being widely accepted and treated by doctors
- It is not life threatening but it is definitly life changing
- Kids of practically any age can have it
- No one is 100% sure what causes it
- Sometimes it feels like the medicines are worse than the disease
- Most medicines are in shot form while some are infusions
- You have to take a bunch of vitamins too because the medicine suppresses your immune system and you get sick easily
- Kids often feel isolated which can lead to depression
- There is no cure
This is it
See also autism
See also Ehlers Danlos syndrome & Fibromyalgia
It’s amazing how much more visible things become when you accept that they exist.It’s amazing how much more visible things become when you accept that they exist.
Definitely on the EDS thing. But it’s really worth pointing out that most people who were diagnosed with fibromyalgia are later correctly diagnosed with something else after testing.
If you have a fibromyalgia diagnosis, you probably actually have EDS, lupus, jra, psoriatic arthritis or something else. I’m not even being ableist or rude, it’s literally what Penn State and John Hopkins told me and my family after I realized that I knew 27 people and were related to 9 people who had their diagnosis fixed (specifically my mom, sister, brother, neice, nephew, several cousins and myself)
Fibromyalgia is often a placeholder diagnosis for when your doctor doesn’t know what to say and has no idea what tests to run. While it is a real disorder, it’s way overdiagnosed, and probably 80% of people who think they have it and therefore have very few treatment options actually do have treatments available for what is actually going on.
If you believe you have fibromyalgia, you have to get a second opinion from a specialist, like a geneticist or a rheumatologist who specializes in autoimmune and genetic disorders. For my family, we realized that we all have EDS and some have psoriatic arthritis. The change in diagnosis and treatment let my mom and sister go back to work for the first time in years and got my twin cousins’ off opiates and out of leg braces. ♂️
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