karolynprg: I continue to practice #HospitalGlam at every visit and procedure because my relationshi

karolynprg:

I continue to practice #HospitalGlam at every visit and procedure because my relationship with my body, each clinical space, and each doctor, nurse, or technician evolves as I keep going. We have new conversations, not only about my health, but about the relationships between care providers and patients, what is observable, and how we can be seen. Every discussion is different, even with doctors I’ve now known for years. The process is more revealing than the photos, and is another intimacy shared with the people in those rooms. It is work, for all of us, and it pushes our understanding further. /////
[#imagedescription: I am seated sideways on a clinician’s gurney positioned upright, stretching a leg off the side while the other is tucked under my body, twisting at the waist, chest open to the camera, arms wide. In a magazine rack on the wall behind me, there is a title labeled”Living”]
#disability #chronicillness #ehlersdanlos #invisibleillness #process #artistsoninstagram #invisibledisability