#imagedescription
‘4:30am ambulance to a new ER to explain my medical history and current symptoms to new docs’ vibe coming in strong
#hospitalglam
[#imagedescription: I’m wearing a green and blue hospital gown + a yellow mask on a blue-sheeted gurney.]
https://www.instagram.com/p/Bq2R_ElHNLc/?utm_source=ig_tumblr_share&igshid=ow1qu8jd4lkh
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I’m so thankful for the support you give to HospitalGlam and the thousands of people who participate in it. Today I’m thankful that my health isn’t as bad as it was when I began the project, and that I can spend more time outside of clinical spaces. I am always advocating for chronically ill and disabled people wherever I am. I would appreciate your continued support while I navigate these uncertain avenues. Thank you again.
[#imagedescription: selfie of an invisibility #disabled woman, looking at you, asking you to love her.] #nottinghill
https://www.instagram.com/p/BqgTJZKn5oN/?utm_source=ig_tumblr_share&igshid=gab1wlpznhk6
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Thankful I’m not here today. A day without posting #HospitalGlam is a good one. Wishing the best possible day to you & yours, wherever you are. [#imagedescription: #tbt selfie from a stress test, in a hospital gown, strapped to the hilt, eyes closed, lavender lipstick, preservation blonde braids.]
https://www.instagram.com/p/BqgA-Ian2-W/?utm_source=ig_tumblr_share&igshid=1wvqvjnu7bf6w
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Reminder: we’re currently in the abbreviated open enrollment period for 2019 healthcare plans. It will end December 15th. Go to https://www.healthcare.gov to sign up.
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#HospitalGlam #Healthcare #ACA #Reminders [#imagedescription: I’m standing against the wall in a clinic room, on the wrong side of a pulled back privacy curtain.]
https://www.instagram.com/p/BqIP-gJHcO0/?utm_source=ig_tumblr_share&igshid=wmi76mce21xd
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Beauty is an anesthetic//
Wellness is a commodity//
Be who you are and take up your space #HospitalGlam
[#imagedescription: I’m clad in black with blue lips on a medical bed. My gaze is directed towards someone offscreen. Yours is directed at me.]
#disabled #saytheword #disabledandcute #invisibleillness
https://www.instagram.com/p/Bp_U6F7HJpp/?utm_source=ig_tumblr_share&igshid=1oy2arlizdwie
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At the #DisabilityImpact #coelhocenterlls conference with @arabellesicardi
[#imagedescription: two femmes posing for a photo at the end of a conference, next to a rollator holding blue bags.] (at Loyola Marymount University)
https://www.instagram.com/p/Bp00OMgHKqw/?utm_source=ig_tumblr_share&igshid=1tygmccck8b4
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The Caesar Cleanse in full swing.
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[#imagedescription: @arabellesicardi and I lounging on matching sofas in silk robes, at the end of a productive day.] #amwriting (at Joshua Tree, California)
https://www.instagram.com/p/BpYw8ZUnWj6/?utm_source=ig_tumblr_share&igshid=fwmq5d89ro79
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I had the incredible pleasure of getting to visit and chat with @toitroutman for a little while last week. This woman is a badass who’s been living with #lupus for decades, and told me a lot about her recent admits. Swapping stories about hospitalists and the confusion that comes with the gap between how we look and how our bodies behave felt like a deep exhale. Sometimes there’s nothing more healing than community. #HospitalGlam
[#imagedescription: a shot of Toi and I standing next to her hospital bed, taken by her son. Toi is in the foreground, showing me how to work some tech offscreen, and I’m standing behind her watching and smiling, because this is also part of illness]
#invisibleillness #chronicillness #invisibledisabilities #disabled #ehlersdanlos #tbt
https://www.instagram.com/p/BpSJrIZHlLU/?utm_source=ig_tumblr_share&igshid=1tndg1tmfscj0
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This week I kept calm and every light is still on so I’ve marked it good. It’s a flexible metric. #HospitalGlam
[#imagedescription: I’m in a doctor’s office, collapsed onto a medical bed set in an upright position. Behind me is a Wayne Thiebaud poster, above a bin marked “soiled linen”]
#chronicillness #disability #sotired
https://www.instagram.com/p/BpJHPBFnKTz/?utm_source=ig_tumblr_share&igshid=1kahtty1m4lck
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This was taken years ago, when I went into my doctor to get checked out after being assaulted. I took photos, as I always do, to enforce my control over the space where I would be examined; where I would go over what happened and determine whether or not I’d come out with more injuries than I already guessed. I never shared it because some things are for me, and I did not want to give it away.
I’m sharing it today because so many of us have survived, and will keep going. We are here for each other, and don’t need to cut ourselves open to receive support. Our strength is flexible, and looks however we need it to look. You are not doing it wrong as long as you stay alive.
I wish none of us had to go through this.
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#HospitalGlam #violence #tw #sexualassault #ptsd #invisibleillness #invisibledisability #survivor #metoo
[#imagedescription: I’m disheveled, on the edge of a medical bed in a gyn exam room, gripping the light above me. I am looking into the lens.]
https://www.instagram.com/p/Bom7SJpHufx/?utm_source=ig_tumblr_share&igshid=1nypcx87plyn3
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#HospitalGlam: Same day, different providers. In the top photo I’d been arguing with techs and staff for 45 minutes before an invasive procedure, and this photo was taken while a tech was staring at me, with the hospital’s legal & corporate departments on the phone. We are always fighting for care, even in vulnerable states. The bottom photo was immediately after that appointment, in another doctor’s office, who gave me test results that weren’t the best but we could meet where we both were emotionally, in this world, right now, and breathe. Every day is hard and weird but there are pockets of hope in the people around us. Let them hold us. //
[#imagedescription: horizontally split image showing me in two separate clinical spaces: in the top one it is me sitting on a gurney in a hospital gown prior to a bilateral breast ultrasound, paying more attention to the speakerphone discussion than the image. In the bottom, I’m sitting on a medical bed in a bright exam room, cross legged in a long black dress, animatedly talking to a doctor, off camera. The mood is very different between the images, as it was between appointments.] /
#chronicillness #disability #disabledandcute #ehlersdanlosgrrrls #selfadvocacy #invisibleillness #survivor
https://www.instagram.com/p/BokKAeqHSWL/?utm_source=ig_tumblr_share&igshid=q4uegdvsrq5o
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I listened to the Kavanaugh hearings until my doctor walked into the room for my #colposcopy today. It was more painful than the procedure by far. #HospitalGlam [#imagedescription: I’m on a sofa in an otherwise empty ob/gyn waiting room, wearing headphones with my fingers interlocked behind my head in stress. I am clearly not happy.]
https://www.instagram.com/p/BoQvq9oHtvX/?utm_source=ig_tumblr_share&igshid=20e43avl5507
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Cut the dead ends and brightened this tough week a bit.
:@sirenesociety
[#imagedescription: selfie with shiny, tousled platinum layers]
https://www.instagram.com/p/BoM-VZhnUwS/?utm_source=ig_tumblr_share&igshid=1a4oe20a81gqu
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Believe Survivors.
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[#imagedescription: #hospitalglam shot of me declining on a gynecologist’s table, while answering questions from the nurse, out of frame. I am dressed in black; behind my head is a print of a man’s head in blue, looking down at me.]
https://www.instagram.com/p/BoHkZVxHcMp/?utm_source=ig_tumblr_share&igshid=1gnylnk02mk5y
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It’s my body and you will not fucking control any part of it #HospitalGlam
[#imagedescription: photo taken in a hospital waiting room, slightly blurry because I feel terrible and did not properly focus the shot before moving into the frame. I am stretched across the arms of a row of waiting room chairs, beneath a framed impressionist print. None of it is comfortable, but idgaf today.]
https://www.instagram.com/p/Bn32SicA8PW/?utm_source=ig_tumblr_share&igshid=19t181gtkhe3a
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The task in illness has become rendering ourselves visible though we have been asserting ourselves as such for quite some time #hospitalglam
[#imagedescription: Black+white photo of me in a doctors office, wearing a paper gown, holding exam gathered to my chest at the foot of the medical bed]
https://www.instagram.com/p/BnuzjwCHAbA/?utm_source=ig_tumblr_share&igshid=c1biu2uehwxq
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#HospitalGlam: Queer & disabled define me though I’m sometimes praised for not letting them. This defies my own bio and is the same thing that elevates brands for exploiting the visibility of unknown disabled bodies and rinses well known, out disabled ones of their identities to preserve their bankability.
[#imagedescription: #hospitalglam photo of me in a pink paper gown. On the wall, a few ames blue face looks on, mournfully.]
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Some rooms don’t kid themselves about sterility. //
[#imagedescription: I’m sitting, stretched backwards in a hotel room chair with my legs bent over its back. I’m backed by panels of chartreuse sheers, letting in the light.]
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Hey! It’s nice to meet you. This #HospitalGlam post is from 3 years ago and explains why I do it in every appointment, even when I don’t post. Xo
[#imagedescription: b&w shot of me trying to sit up on the edge of a flat medical bed. I’m caught in motion, because I’m alive]
#Repost @karolynprg with @get_repost
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I use #HospitalGlam to reassert my sovreignty over my body prior to meeting with medical professionals. Medical offices are designed for patient use, but we are transient in them. In the course of chronic illness, it is sometimes difficult not to extend this transience to our own bodies. Occupying sites of pain and/or trauma moves us to develop coping mechanisms for long term survival. In appointments, I need to be present and recognize that I have more experience with my body than anyone else. This enables me to advocate for myself and work with my doctors towards the best care in my reach.
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#whatishospitalglam #faq
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Looking out through the porch of Llangelynin Old Church, high up on the edge of the Conwy Valley. The oldest parts of the church are 12th or 13th century.
[Image description: a colour Instagram photo of the view looking through a porch built of stone and wood beams, past low wooden gates, into a grassy graveyard.]
#ImageDescription #Snowdonia #SnowdoniaNationalPark #eryri #wales #cymru #FindYourEpic #ThisIsMyAdventure #AwakeTheSoul #KeepItWild #hiking #travel #TravelPhotography #adventure #NaturePhotography #GetOutside #UKHikers #wanderlust #DiscoverEarth #PeopleWhoAdventure #snowdoniagram #ThisIsMyWales #YesCymru #Church #medieval #mediaeval #llangelynin
https://www.instagram.com/p/Cb-7LrTMm6G/?utm_medium=tumblr
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