#kprghglam
Your quarterly reminder is here.
What is #HospitalGlam? For those who are new to the project:
#HospitalGlam is a social movement that uses site specific self portraiture (or selfies) to further self advocacy and boost disabled and chronically ill voices. The term #HospitalGlam was coined as a dark nod at the complexities in representing invisible illness. The project started by appropriating fashion imagery and reinserting it into medical environments using bodies that don’t outwardly present as sick or disabled. #HospitalGlam is about contextualizing ourselves inside the often alienating medical environment in order to assert our rights as patients and better our treatment. By taking #HospitalGlam photos and posting them on social media, patients increase awareness of invisible illnesses in their communities and with doctors. -
#HospitalGlam is now a hashtag that gives a visual to the work of thousands of disabled and chronically ill people who advocate for themselves by taking up space in clinical enviornments. #HospitalGlam and it’s participants have been covered in Buzzfeed, HuffPo, The Guardian, and more. Below are some brief guidelines for the project, which are explained in greater detail in the Hospitalglam.com/FAQ. I recommend the FAQ. -
-You must be in the photo
-It must be in a clinical environment. -
-Bathrooms, Cars, or other places where you might not need to advocate for yourself with a medical professional do not apply. -
-POV shots (needle in arm, or shots of your procedures instead of you) are excluded from this project.
-Images of text only have no place.
-You don’t have to wear a special outfit, or makeup or anything fancy. Just be yourself and push for the treatment you need. It is enough.Thank you!
#disabled #invisibleillness #chronicillness#disabilityfashion #disabledartists#whatishospitalglam #hospitalglamfaq#periodicreminders #tbt
[#imagedescription: #tbt self portrait taken prior to an exam. I’m standing beside the medical bed, with my cane]
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Examined or Seen
#HospitalGlam
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#invisibleillness #disability #ehlersdanlos #dysautonomia #chronicpain
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#HospitalGlam: The tech and I spoke about procedural stress, and how seeing something from a different perspective, or acknowledging that trauma can be hard to see, can make diagnosis and treatment easier on both doctors and patients.
[#imagedescription: A straight on, waist-up photo of me, sweeping my hair back, in the glass booth seconds before #PulmonaryTesting began.]
#EhlersDanlosGrrrls #InvisibleIllness #Disability #lungs #chronicillness #invisibledisabilities
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Today I asked the nurse if this had a name and she said “medical transformer”. “No, I meant the bed” #HospitalGlam
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Hey new followers! Here’s a short rundown. Enjoy!
What is #HospitalGlam? For those who are new to the project:
#HospitalGlam is a social movement that uses site specific selfies to further self advocacy and boost disabled and chronically ill voices. The term #HospitalGlam was coined as a dark nod at the complexities in representing invisible illness. The project started by appropriating fashion imagery and reinserting it into medical environments using bodies that don’t outwardly present as sick or disabled. #HospitalGlam is about contextualizing our full selves inside the clinical environment in order to assert our rights as patients and better our treatment. By taking #HospitalGlam photos and posting them on social media, patients increase awareness of invisible illnesses in their communities and with doctors. It allows us to flip the gaze so we control it. -
#HospitalGlam is now a hashtag that gives a visual to the work of thousands of disabled and chronically ill people who advocate for themselves by taking up space in clinical enviornments. #HospitalGlam and it’s participants have been covered in Buzzfeed, HuffPo, The Guardian, Self and more. Below are some brief guidelines for the project, which are explained in greater detail in the Hospitalglam.com/FAQ. I recommend the FAQ. -
-You must be in the photo
-It must be in a clinical environment. -
-Bathrooms, Cars, or other places where you might not need to advocate for yourself with a medical professional do not apply. -
-POV shots (needle in arm, or shots of your procedures instead of you) are excluded from this project, because they force the viewer to look through our eyes instead of at us, projecting their feelings into our experiences.
-Images of text only, aspirational sayings, etc.
-You don’t have to wear a special outfit, or makeup or anything fancy. Just be yourself and push for the treatment you need. It is enough.Thank you!
#disabled #invisibleillness #chronicillness#disabilityfashion #disabledartists#whatishospitalglam #hospitalglamfaq #periodicreminders #tbt
[#imagedescription: #tbt self portrait taken prior to an exam. I’m on a medical bed, pushing my hair out of my face]
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This is my whiteout pain face. It doesn’t look as depicted on the pain scale. #HospitalGlam
[#imagedescription: Black & white selfie post-stress test. I’m on my back, in a hospital gown, braided pigtails, with leads attached to my chest.]
#chronicillness #disability #invisibleillness #invisibledisability #ehlersdanlossyndrome #painscale
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I continue to practice #HospitalGlam at every visit and procedure because my relationship with my body, each clinical space, and each doctor, nurse, or technician evolves as I keep going. We have new conversations, not only about my health, but about the relationships between care providers and patients, what is observable, and how we can be seen. Every discussion is different, even with doctors I’ve now known for years. The process is more revealing than the photos, and is another intimacy shared with the people in those rooms. It is work, for all of us, and it pushes our understanding further. /////
[#imagedescription: I am seated sideways on a clinician’s gurney positioned upright, stretching a leg off the side while the other is tucked under my body, twisting at the waist, chest open to the camera, arms wide. In a magazine rack on the wall behind me, there is a title labeled”Living”]
#disability #chronicillness #ehlersdanlos #invisibleillness #process #artistsoninstagram #invisibledisability
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We can not simulate freedom. The Americans with Disabilities Act (ADA) was signed into law in 1990 to protect us from discrimination based on ability, and to allow us to move through the world independently. A bill dismantling it, #HR620, sailed through the House of Representatives and will soon be on the Senate floor for a final vote. We need your help to keep our civil rights intact.
Contact your senators now and urge them to stop the passage or #HR620, which would make it nearly impossible to enforce our rights under Title III of the #ADA to access public accommodations. Do not let them pass this, or any legislation like it.
#HospitalGlam #Disabled #SayTheWord #SaveTheADA #StopHR620 #chronicillness #disability #civilrights #callyourreps [#imagedescription: #HospitalGlam photo in which I am reclining on a medical bed, wearing a black leather skirt and a T-shirt that reads “On ne peut pas simuler la liberté”]
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Abstract
This article offers a preliminary investigation into what I term “selfies of ill health” and traces the expansion of the autopathographic genre in visual media from professional art photography to the vernacular selfie in recent years. In this context, the word autopathography is used to describe self-representational practices that offer a first-person perspective on experiences of illness or hospitalization. I first situate the genre by identifying several typologies of selfies of ill health, including diagnostic selfies, cautionary selfies, and treatment impact selfies. I then focus on the forms of identity performance that selfies, and selfies of ill health in particular, deploy. I argue that the performative qualities of certain selfies of ill health overlap with salient characteristics of autopathographic practice in the arts. Using Karolyn Gehrig’s #HospitalGlam series as a case study, I examine how autopathographic selfies can also construct a politicized dramaturgy of the lived body, notably by enabling individuals like Gehrig to “come out” as being invisibly ill. I conclude that the dramaturgical thrust of such autopathographic imagery is to convey both the centrality of medical experiences in subjects’ lives and their specific desire to be publicly identified as persons living with illness. In light of this, although selfies of ill health may have opened up new avenues for autopathographic practice thanks to the affordances of social media, their communicative intents remain consistent with those of earlier forms of autopathographic photography.
While we mourn, please remember that tragedies create both physical and invisible disabilities. Those impacted by today’s events are likely to have mental health diagnoses which will complicate interactions and treatment for other, unrelated heath concerns that may arise in the future. Additionally, they will have new accessibility needs.
While you are calling to register your feelings about today’s events with your congressional representatives, please make mention of #HR620, a bill that would alter the #ADA, rolling back civil rights for disabled people, present and future. Thank you.
[#imagedescription: #hospitalglam image of me, standing between the curtain and bed in an exam room. I do not appear sick. One of the things discussed this day was the impact of #PTSD on my body.]
#invisibleillness #invisibledisability #handsoffmyada #ableismesq #chronicillness #disabled #disabilityrights #civilrights #guncontrol #fuck #thoughtsandprayers
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From this direction my breath photographs as shock #hospitalglam
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[#imagedescription: timed photo of me, a #disabled white blonde woman, during a chest x-ray. I’m wearing a hospital gown over leggings, and the lens is tilted to stabilize the other photo, the X-ray, in the shot.]
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