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clinicallychronically:

Some weird shit has been happening

I have some of the weirdest symptoms from the past few days now.

Super insane night sweats

Migraine

Slightly distorted vision from time to time

Going from super cold to insanely hot in the matter of minutes

Nausea

Suuuuper bad fatique

Neck pain

The base of my skull hurts

My hands are a little bit shaky

Night sweats that wake me up because I’m fucking freezing

NO FEVER ????????

WHAT THE HELL EVEN IS THIS MESS. I FEEL LIKE I CAN’T EVEN DO ANYTHING RIGHT NOW. THESE SYMPTOMS MAKE NO FUCKING SENSE. HALP. WAT EVEN IS THIS?????????

Same??? I thought I was just a mess?

Life Update #1

Hi everyone! I sincerely apologize that I haven’t been active lately. I’ve been in kind of a funk because I got sick, which made me stressed over school and my other responsibilities. I created this tumblr in order to educate others (including myself) about Ehlers Danlos Syndrome, invisible illnesses, Dysautonmia, and more; also to integrate myself into a community for emotional support. I really want this blog to succeed and thrive. I put a lot of thought into my posts, reblogs, and direct messages to try and be as relatable as I can, while also being accepting of all different types of communities out there. As a result, I’m not active on here unless I’m sincerely able to dedicate myself to it. (Does any of this even make sense???) Anyway I’m getting out of my funk, so I should be on here more!

stupidjewishwhiteboy:

jennytrout:

mttheww:

uglylilmonster:

pardonmewhileipanic:

thefemcritique:

lestieloftus:

How most people with invisible illnesses are treated by health care “professionals”

The Golden Girls didn’t fuck around

pls watch

honestly i really appreciated this scene when I first saw it bc it took me like two years to get a diagnosis for what’s wrong with me

Dorothy:  Dr. Budd?

Dr. Budd:  Yes?

Dorothy:  You probably don’t remember me, but you told me I wasn’t sick.  Do you remember?  You told me I was just getting old.

Dr. Budd:  I’m sorry, I really don’t–

Dorothy:  Remember.  Maybe you’re getting old.  That’s a little joke.  Well, I tell you, Dr. Budd, I really am sick.  I have chronic fatigue syndrome.  That is a real illness.  You can check with the Center for Disease Control.

Dr. Budd:  Huh.  Well, I’m sorry about that.

Dorothy:  Well, I’m glad!  At least I know I have something.

Dr. Budd:  I’m sure.  Well, nice seeing you.

Dorothy:  Not so fast.  There are some things I have to say.  There are a lot of things that I have to say.  Words can’t express what I have to say.  [tearing up]  What I went through, what you put me through—I can’t do this in a restaurant.

Dr. Budd:  Good!

Dorothy:  But I will!

Dr. Budd’s date:  Louis, who is this person?

Dr. Budd:  Look, Miss–

Dorothy:  Sit.  I sat for you long enough.  Dr. Budd, I came to you sick—sick and scared—and you dismissed me.  You didn’t have the answer, and instead of saying “I’m sorry, I don’t know what’s wrong with you,” you made me feel crazy, like I had made it all up.  You dismissed me!  You made me feel like a child, a fool, a neurotic who was wasting your precious time.  Is that your caring profession?  Is that healing?  No one deserves that kind of treatment, Dr. Budd, no one.  I suspect had I been a man, I might have been taken a bit more seriously, and not told to go to a hairdresser.

Dr. Budd:  Look, I am not going to sit here anymore–

Dr. Budd’s date:  Shut up, Louis.

Dorothy:  I don’t know where you doctors lose your humanity, but you lose it.  You know, if all of you, at the beginning of your careers, could get very sick and very scared for a while, you’d probably learn more from that than anything else.  You’d better start listening to your patients.  They need to be heard.  They need caring.  They need compassion.  They need attending to.  You know, someday, Dr. Budd, you’re gonna be on the other side of the table, and as angry as I am, and as angry as I always will be, I still wish you a better doctor than you were to me.

Reblogging for any of my mutuals who’ve ever dealt with Dr. Budd.

“Shut up, Lewis”

This moved me to tears. It’s upsetting how I, and so many others, can relate.

This is an AWESOME video explaining how straws are a necessity to some disabled people. It’s 7 minutes but so worth the watch!

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