#ehlersdanlosgrrls

#Hospitalglam: I had an echocardiogram this morning, at the big LA hospital I go to which feels like my home because I’m always there and almost everybody is so great with me. The receptionist checking me in said I had a great aura, and raved about my @marinafinionme earrings. I smiled and was happy when the tech called me in a few moments later. She was warm and we talked easily about patient agency and how hard it was to be seen; as a chronic patient, as a woman. She told me how much she felt it was an exchange of information and energy- that she learned from her patients- and that she was so happy to be there with me, as she moved an instrument over my heart to chart its rhythm. It’s hard to be disabled and navigate the medical system, especially in the US, but I am so grateful for the time I get to spend with caregivers like the one I had today, where I barely noticed the procedure due to the amazing connection I had. In this photo, I was not paying attention to the photo over the conversation I was having. It was incredible and I can only hope I cross paths with this amazing person again. #ehlersdanlosgrrls #echocardiogram #cardiology #chronicillness
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