#fibromyalgia

LIVE

Heating pad is not enough. I wrap myself in a heated blanket on high. I’ll just cook myself.

Systemic Lupus, APS, thyroid. And fibromyalgia and pots have stemmed from my autoimmunity.

My mind is young. Not my body ha. I look like that old lady whenever I get up from a seated position

Be your own advocate. I research from reputable sources. I am not afraid to ask questions or ask about a test I feel I need. I am lucky my lupus specialist is a great Dr. But I have ran into horrible doctors.

Burrrr. I always have chilly, corpse looking feet!

Especially when you need meds from a specialty pharmacy and it takes three weeks to refill your next month of injections for Lupus because of problems on their part. ‍

Short of breath. Constantly feeling your heart beating when you’re sitting or standing.

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