#journal post

LIVE

Went on a photoshopping splurge and changed my theme. I am quite fond of this movie!

While I’m excited, if that’s the right word - nobody’s really excited to be sick, but it’s exciting to think I might soon have a name for it and secure permanent access to the supports I need to manage it - that it looks likely I have EDS or some other form of connective tissue disorder based on the rheum’s assessment, my lifelong history of joints that are extra bendy but also prone to injury and pain and finding out I have family history of that on both sides, today I’m frustrated at everything that still wouldn’t explain. Every neurological test for the symptoms I have came back normal but I still have the intermittent numbness and difficulty of movement in my limbs, especially my legs, with alternating and sometimes simultaneous tingling and burning sensations, and the way my muscles feel weak or sort of collapse sometimes even though there’s no sign of muscle deterioration. If I don’t have a neurological disorder then why is my body doing this??

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