#postural orthostatic tachycardia syndrome

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Doctor: it’s probably just growing pains

Me, a 21 year old, who stopped growing 7 years ago:

[ID: Gif of a teenage boy who is angry saying “this is bullshit!”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic pain #chronic fatigue #growing pains #undiagnosed #hypermobility #hypermobility spectrum disorder #ehlers danlos #ehler danlos syndrome #dysautonomia #potsie #postural orthostatic tachycardia syndrome #myalgic encephalomyelitis #chronic fatigue syndrome #fibromyalgia

@chronicallyjessica

Sat, 18 May 2019 00:23:21

“You don’t look like you’re a 7 on the pain scale”

[ID: Gif of man saying “You can’t always judge from external appearances.”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #hypermobility #hypermobility spectrum disorder #ehlers danlos #ehler danlos syndrome #potsie #dysautonomia #postural orthostatic tachycardia syndrome #myalgic encephalomyelitis #chronic fatigue syndrome #fibromyalgia

@chronicallyjessica

Sat, 11 May 2019 00:39:29

How my joints make me feel when I first wake up in the morning

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #joints #hypermobile #hypermobility #hypermobility spectrum disorder #ehler danlos syndrome #ehlers danlos #dysautonomia #potsie #postural orthostatic tachycardia syndrome #stiff joints #myalgic encephalomyelitis #chronic fatigue syndrome #fibromyalgia

@chronicallyjessica

Sat, 04 May 2019 13:50:29

When my brain fog makes me do something ridiculous

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #brain fog #cognitive dysfunction #dysautonomia #potsie #hypermobility spectrum disorder #hypermobile #hypermobility #ehler danlos syndrome #ehlers danlos #postural orthostatic tachycardia syndrome #myalgic encephalomyelitis #chronic fatigue syndrome #fibromyalgia

@chronicallyjessica

Fri, 19 Apr 2019 23:56:11

Me, someone with POTs, everyday

[ID: Gif of Stanford Blatch from Sex and the City sat on a sofa saying “This morning was good. But then I got up.”]

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #dysautonomia #potsie #postural orthostatic tachycardia syndrome #syncope #presyncope

@chronicallyjessica

Sat, 13 Apr 2019 01:40:47

When a doctor has to google your condition in front of you

#spoonie #chronic illness #chronically ill #invisible illness #chronic fatigue #chronic pain #hypermobility spectrum disorder #hypermobile #hypermobility #ehler danlos syndrome #ehlers danlos #dysautonomia #potsie #postural orthostatic tachycardia syndrome #mast cell activation syndrome #myalgic encephalomyelitis #chronic fatigue syndrome #fibromyalgia

@chronicallyjessica

Sat, 23 Mar 2019 00:00:01

When your medication makes you worse not better

#spoonie #chronic illness #chronic pain #chronic fatigue #medication #prescription medication #chronically ill #invisible illness #side effects #dysautonomia #hypermobility spectrum disorder #postural orthostatic tachycardia syndrome #potsie #mast cell activation syndrome #myalgic encephalomyelitis #chronic fatigue syndrome #fibromyalgia

@chronicallyjessica

Wed, 20 Mar 2019 00:10:45

nah brah we got room

#lyme disease #chronic lyme #bartonella #spoonie #spoon theory #chronic illness #fibromyalgia #endometriosis #postural orthostatic tachycardia syndrome

@bartonellababe-blog

Thu, 21 Jan 2016 12:46:44

1) Salt.

2) Water.

Repeat.

#pots disease #postural orthostatic tachycardia syndrome #chronic illness #dysautonomia #spoonie #lyme disease #chronic lyme

@bartonellababe-blog

Wed, 28 Oct 2015 14:36:26

ghurnax:

sleepysigh:
angellore:
angellore:
angellore:
angellore:
No, but seriously. If whenever you get up from wherever you start to feel faint, get palpitations, get numb, get nauseous, get light-headed and/or literally feel your blood drop to your feet, check the symptoms of Postural Orthostatic Tachycardia Syndrome.
Also add more salt to your diet lol. With or without the POTS unless you have hypertension in which case I’d be more cautious.
Actually, it’s not just that you can reblog this. I want people to reblog this.
My poor mom went by years without knowing why the fuck she was having all these debilitating symptoms.
All it took was me making her add some more salt to her diet and have an isotonic drink daily and she IMMEDIATELY (as in, less than an hour) stopped feeling faint whenever she got up from kneeling down and her hair is slowly falling off less and less.
She used to need at least 5 minutes to recover from kneeling down and now she kneels down and stands up like it’s nothing. Even her joint pain from EDS and brain fog have improved tremendously and she has much more energy.
It’s not normal to always get dizzy when you kneel down and then get up, or when you get up from bed or a chair.
It’s not normal for any of that to make you light-headed or nauseous, or get blurry vision, headaches or palpitations.
It’s not normal for your body to suck at regulating its temperature and for your heart rate to go insane if you’re just mildly stressed.
It’s not normal to want to be active and “productive” but be unable to get your body to do anything so you just lay there, or if you manage to get anything done, you’ll need a whole week to recover.
It’s not normal to be tremendously tired all the time no matter how much you rest and sleep, even if people think you’re just “lazy”.
I’m pointing all these things out as abnormal because chronically ill people tend to not realize that our symptoms are symptoms.
Our individual bodies are the only bodies we’ve experienced and since most of us don’t look any different from others and aren’t taken seriously when we complain of any ailment, we assume our symptoms happen to everyone. They do not.
People with no physical conditions (at least not impairing ones such as being a bit short-sighted) do not have their bodies make life difficult for them, unless they’re temporarilyill.But we are ill ALL the time.
Take yourself seriously. Doctors and healthy people already don’t, so if you don’t take yourself seriously, who will?
If your body is making life difficult for you, there’s probably something going on with it, and if it persists and nothing makes it go away, it may be a chronic illness.
POTS can develop in previous healthy people after a Covid infection. If you have had Covid recently or know someone who has, please keep this in mind.
ya boy had Covid and my Doctor thinks I may have POTS as part of my Post-Covid Syndrome. He has me drinking pedialyte to help with it because of the sodium content and I gotta say, it’s expensive but at least it fucking works.