#invisible illness
Me: I’m chronically ill which makes me disabled. I managed to adjust my life so I can live as comfortably as possible, which means I don’t work, being poor, and not doing much. Sometimes I have to sleep all day, sometimes I go on hikes with my dog, sometimes I exist, sometimes I want to kill myself. That’s my life and I’m okay with it.
Ppl: BbUuuTTt — ThAt soUndS dEpreSSinNngG!
Ppl: buTtT — I COulDn'TttT lIvE liKe thIsS!
Ppl: BbuUUTtTtT — iSn’T tHEre ANyThiNg THaT caNn bE DoNe tO chAnGe YOur depREssIng stAte?
Ppl: bUuuUtT — LivE iS abOUt LIVING, NOT EXISTING!
Ppl: buTT — hOw cAn yOu LIvee LikE tHat?
Ppl: buTttTTTTT — DoNt be So neGaTiVe, if IT wAsS mE, I WouLd bE mORe HopEFuLl, That thEre WiLL Be a CuRe, AND My dePreSsIng LIfesTyLe WoUlD eNd.
Ppl: BUttT — YOure SUCH AN INSPIRATION!!! I wOuLdvE kIlleD MYsElf By NoW!
Ppl: BbUuutTtTTtTTttTTTtttTtFFTFTGdvdbdjaoownKGgafcwvsvezzeezhdhcbjdakwjcvgcudwkmqnbsgdhchnsbevahauJJKKKiHGFFFdDEGhJanBabakaksm
Me: Well, at this point we should think about who is the really negative person in this conversation.
Ppl:
Ppl:
Ppl:
Ppl: Yeah, no, you’re negative, saying you’re disabled is negative, disability is okay in and of itself, but don’t call yourself disabled, because that’s so negative, not having goals and not accomplishing anything in life is a wasted life, contributing to society is important, you’re so poor for not seeing how you’re wasting your life, you should really try to change something, although I admire you, because I would have killed myself by now, just saying.
So disappointing
I like to have this saved in my phone so I can show friends, family, or random people who are curious to understand the spoon theory and for them to get a better understanding of what we have to do/think about every day.
My spoonie name is Cancel-y VonYogapants! Lol seems about right.
What is your spoonie name??
You know you have pots / OI when you are the most capable, motivated person when lying down but as soon as you get up its a whole different story
Me, someone with POTs, everyday
[ID: Gif of Stanford Blatch from Sex and the City sat on a sofa saying “This morning was good. But then I got up.”]
Literally me this morning
Coming good now though at 10.30pm
Me when I get another diagnosis to add to my list
[ID: Gif of a woman, Margaery Tyrell from Game of Thrones, smiling and saying “I must be cursed.”]
When someone sees me dislocate and then relocate any joint for the first time
[ID: a gif Rylan, a bearded man, looking confused saying “I don’t know what I’ve just watched”]
“Don’t you think the doctors are probably fed up of seeing you so often?”
[ID: gif of a middle aged man holding a mug saying “They may resent me. I don’t care.”]
When you first start your physiotherapy program
[ID: Gif of Samwell Tarly saying “I’m not cut out for this start of work”]
Most doctors when you ask them what could be causing your symptoms when the blood tests come back as normal
[ID: A gif of a woman, Lucille from Arrested Development saying “I don’t understand the question and I won’t respond to it”]
What it’s like when a flare hits you out of nowhere
[ID: a gif of a man opening his door to find another man there with a bin says “surprise, bitch!” then chucks it in his face so hard he falls down]
When you ate the food you’re intolerant to and now regret your decision
[ID: A gif of a man, Bryan Cranston, in a suit shouting “I’m bloated as hell and I can’t take it anymore!”]
“You’re too young to be thisill”
[ID: Gif of a man saying “we can’t all be as blessed as you”]
“Who could have that many conditions”
[ID: Gif of a man smiling slightly shaking his hands]
When you have POTs and need to eat lots of salty food but hate it with a passion
[ID: A gif of a man with a look of disgust on his face after eating something]
Doctor: I’ll refer you but he’ll probably not do anything to help ease your symptoms
Me:
[ID: gif of Sandwell Tarly saying ‘he can bloody well try.”]
When someone watches me attempt to get my hip back in place
[ID: gif of a man sat down saying “that was hard to watch.”]