Endometriosis—the struggle is real. Killer cramps are NOT normal. Periods that last longer than 7 days are NOT normal. Heavy bleeding that soaks through a tampon every 2 hours is NOT normal; pain during sex is NOT normal. Bouts of diarrhea and vomiting that accompany every menstrual cycle are NOT normal. No, no, and no! For many people, this reality is just endometriosis at work.
Sad truth: Many of us are taught to downplay these symptoms. Our pain is diminished by parents, siblings, friends and even health care professionals who convince us that everyone goes through this.
Maybe that is why, according to the Endometriosis Foundation of America, it takes 10 years on average to receive an accurate endometriosis diagnosis. That’s a decade, people! That’s 130 periods of agony, 912 days of someone asking you to take Advil and suck it up. That…is not okay.
Endometriosis is pervasive. It affects 1 in 20 Americans of reproductive age and an estimated 176 million people worldwide. It occurs when tissue similar to the endometrium (the lining of the uterus) is found outside the uterus on other parts of the body.
There are lots of symptoms that can vary among patients. Pelvic pain is most common, as well as pain that coincides with menstruation. Other symptoms include heavy cramps, long-lasting bleeding, nausea or vomiting, pain during sex and, unfortunately, infertility. Some people may even experience symptoms throughout their entire cycle—a real drag.
In addition to these physical symptoms, endometriosis takes a toll on someone’s personal and professional life. Chronic pain can severely affect quality of life day-to-day; medical care can be extremely costly. Furthermore, absenteeism can alter relationships in the workplace and at home.
Despite the intense discomfort, many people do not realize they have endometriosis until they try to get pregnant. And because the disease tends to get progressively worse over time, approximately 30-40% of people who have endometriosis experience fertility challenges.
There is no simple diagnostic test for endometriosis—no blood, urine, or saliva testing can confirm the condition. The only way to verify endometriosis is to undergo a diagnostic laparoscopy with pathology confirmation of biopsy specimens.
On the bright side, many endometriosis symptoms— including infertility—can be addressed after diagnosis. The gold standard for endometriosis treatment is laparoscopic excision surgery. This involves a careful removal of the entire endometrial lesion from wherever it grows.
The first step to getting there is recognizing that your pain is not normal and seeking timely intervention. The earlier endometriosis is detected and treated, the better the results. Tracking your symptoms will make you better informed for your next doctor’s visit, and set you on a path to better (and less painful!) menstrual health.
This is SO IMPORTANT. It took me 23 years of horrific periods and masking the condition with nearly every hormonal birth control under the sun, tens of doctors dismissing me and telling me to go away and take the pill, and my own mother on my second ever period (as I screamed and cried) telling me ‘it’s just like this for our family, it’ll go away when you have a baby’ (I was NINE years old), before I shouted NO MORE and finally got to see a gynecologist. One of my periods (off birth control) was so horrendous that I vomited bile in the street after being kicked off a bus for being ill (I think they thought I was either ON drugs, or withdrawing) - that was after being sent home from work for being 'clearly contagious’. Many a period have made me actually pass out, let alone the week leading up to them where my colon painfully freaks out. There are many more symptoms I experience but they are mostly covered in the original post. If any of this sounds familiar, demand to see a gynecologist. It is NOT okay to live like this, and regardless of how many other women you listen to talking about their painful periods, yours are far worse, please don’t try to downplay your own experience and think that what you go through is what they’re talking about; it’s not. Even if female GPs have told you some women are just 'unlucky’ or however else they like to brush it off, please don’t take that as an answer. You deserve that referral to a gynecologist to get checked out and get a proper line of care.
