A Team Masterlist

This is the master list of my Andy Biersack fic A Team. Let me know if any of the links don’t work.

1. A Team Andy X Reader
2. Rebel Yell
3. Never Give In
4. Beautiful Remains
5. It’s Not Kidnapping If You Don’t Put Up A Fight
6. 7 Years Of Good Luck
7. Wanna Go For A Walk?
8. I’m Sorry
9. Wake Up
10. What Have I Gotten Myself Into?
11. Loveless
12. Bittersweet
13. You Came Back
14. Well I Guess I Win Then
15. Kiss MeSmut
16. I Wish I Could Remember
17. Roller Coaster
18. I Promise
19. Hi Sleepy I’m Batman
20. To Good To Be True
21. Saved Me
22. Safe and Sound
23. Old Friends
24. Day In The Life
25. He Was Hot
26. Mrs. Biersack
27. Ever After END

Living with SMA Video Contest - My Not So Normal Normality

December 1, 2018

“My advice to other disabled people would be, concentrate on things your disability doesn’t prevent you doing well, and don’t regret the things it interferes with. Don’t be disabled in spirit as well as physically.” -Stephen Hawking

Greetings from the girl sitting at her computer writing to you all. I have some important information to share with all of you. So sit back, and please read this all the way through. I understand that all of you have busy lives, however, this is extremely important to me.

A week or so ago, I sent out a post promoting a video I have created for a contest. This contest’s main purpose is to bring about more awareness to my disease, Spinal Muscular Atrophy. The winner of this contest will be decided by how many likes each contestant has on their video. I am competing against five other people who also have SMA. Now, my video has 72 wonderful likes, thank you so very much to those who took the time to click the like button on my video and not just my post, but 3 of the other contestants have likes in the hundreds. I noticed that my video, compared to the rest of them, is extremely different. My competitors simply did a video of themselves speaking, while mine is a narration with music accompaniment. Speaking for 3 minutes straight is not an easy feat, therefore I attempted to make my submission a bit more creative and entertaining on this topic that hits so close to home.

So, please, click or tap on the link below to my video on YouTube and click the like button, if you haven’t already. Every “like” and every “share” is so important to get this video out to more and more people. Let’s make this video go viral and show the world that, yes, living with an impairment is difficult. But it makes us who we are, and it’s nothing to be ashamed of.  Always Keep Fighting. Be Well Be Strong.

Thank you all in advance.

https://youtu.be/ZPBRmn0sIbU

SMA Awareness Month

August 1, 2018

Hello, my lovely followers! It is the first of the month and I have a bit of an update for you all.

Today is the first day of August and today marks the first day of SMA Awareness Month. To mark this special day, I am currently watching/listening to The Theory of Everything while writing this update. Honestly can’t express enough how much I worship Stephen…

Anyway, the month of August has a very special day in it. The second Saturday of August, the eleventh, is the SMA Candle lighting that occurs every year, and last year was the first year I made a severe impact on the social media world.

Thanks to Andy Biersack, more than 1,100 people saw and interacted with my tweet about lighting a candle for those who lost to SMA and to those still living with SMA. It was absolutely amazing and extremely humbling to have the boundless tweets coming in with people sending gifs of candles or finding candles from around the house and taking photos of them to send to me.

It would be absolutely amazing if any of you lit a candle to raise awareness, once again, for Spinal Muscular Atrophy. There is no pressure if for some reason you can’t participate, but if you do, it would be greatly appreciated if you sent me a photo of your candle or of you with your candle. I’ll send out a few reminders in case anyone forgets.

My next bit of news is that I found an article in a magazine while at the doctors about a family who has a little boy with SMA and how he got Spinraza while it was still in the clinical trial phases. This story was in a regular magazine, an Easter magazine from this year. And. SMA. Was. In. It. The article is here if you want to read it.

JOIE DE VIVRE PHOTOGRAPHY

Now, for my last bit of news. I had to write a poem for my English class, so I decided to write it about the past few months. I discovered that it’s been nine months since my grandmother insisted on contacting someone to get the ball rolling on getting me Spinraza. How different the world was just a year ago. I didn’t even think I would be where I am today.

So I wrote a poem, and this poem means more to me than anyone will ever know.

Initium Novum

By:D.S.S.

It all started with a dream.

The future was unclear,

Bursting at the seams,

After living in fear

Of the unknown.

Time to get going.

Time to act.

Get in the car,

Down that winding road.

Wheels are turning.

The cage door opening,

Wings unfurling,

Emotions swirling.

She will not surrender.

Although clipped wings hinder,

She will fly, oh will she fly,

Into that starlit sapphire sky.

The road becomes narrow,

Obstacles arise,

A constellation

Of consternations

That challenge the view

Of the world in the eyes

Of the little sparrow.

Despite these drawbacks,

She’s chosen the right track,

On this bumpy ride ahead;

For this little sparrow,

With internal candle burning,

Looks ahead to freedom

Yearning.

A new dawn breaks,

Mountains fading from sight,

A clear road ahead,

Flying into the light.

It all started with a dream.