#fibro tag

LIVE

chronic-pain-culture-is:

if you’re a fat person who feels like they can’t use mobility aids because you’ll be mocked and told you don’t need them and that you just need to lose weight and you won’t need it: i love you so much, and i’m so sorry people have told you these things. you can use a mobility aid no matter what weight you are, because a mobility aid doesn’t make you dependent on it or take away autonomy.

it gives you the ability to move better. it helps you move around. there is nothing bad about something that aids you, especially if it enables you to do something you can’t do otherwise. use the motorized cart in the grocery store. use canes. use a rollator or a walker. use whatever you need. your weight has nothing to do with it, and you deserve to be in less pain regardless of what size you are.

Do wanna know why us spoonie have trouble telling people we’re sick?

Because we were raised by parents who were angry and who doubted us when we wanted to stay home from school cuz we were sick. We were surrounded by nurses and doctors who told us we were overdramatic or crying too much. We had elderly people tell us how happy we should be that we aren’t in pain and should treasure our youth. We had family and teachers look down on us for spending any extended time in bed or on the couch. We had TV shows shame people who weren’t healthy.

We live in a society where being ill is seen as being about how the person who is sick just isn’t doing enough. Unless you have cancer, it’s your fault somehow. You could eat better, exercise, or see better doctors. It is impossible for them to see illness as inevitable.

And it sucks that no one understands or sees what we go through. But society is broken and flawed and has no compassion for us poor spoonies.

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