Self Portrait in recovery. | After yesterday’s feeding tube change, coming out of sedation. I

Self Portrait in recovery.

| After yesterday’s feeding tube change, coming out of sedation. I had to advocate hard, as always. So it is with rare disease. The nurse and doctors did congratulate me when I tried to apologise for any terseness.

EDIT: DO NOT REMOVE MY CAPTIONS ON REBLOGS, DAMMIT. MY WORDS, MY IDENTITY AND MY EXPERIENCE ARE NOT FOR YOU TO EXPLOIT AND REMOVE.