#peg tube

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Self Portrait in recovery.| After yesterday’s feeding tube change, coming out of sedation. I had t

Self Portrait in recovery.

| After yesterday’s feeding tube change, coming out of sedation. I had to advocate hard, as always. So it is with rare disease. The nurse and doctors did congratulate me when I tried to apologise for any terseness.

EDIT: DO NOT REMOVE MY CAPTIONS ON REBLOGS, DAMMIT. MY WORDS, MY IDENTITY AND MY EXPERIENCE ARE NOT FOR YOU TO EXPLOIT AND REMOVE.
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What a torture train this has been.Sorry I haven’t been around much, tumblr. I need to come

What a torture train this has been.

Sorry I haven’t been around much, tumblr. I need to come back and do some writing and share some photos. My soul hurts.

In the meantime, follow me on Twitter (@cherryrae) or Instagram (@cherryperson).


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