#actually chronically ill
It never hit me just how much physically disabled autistics are erased from all discourse and even advocacy for the autistic community until I saw someone mention us in a very brief shoutout to autistics who’re not your low needs more stealth and able-bodied ideal. But that thought has been living in my head loudly banging pots around me 24/7 since I saw that post.
Don’t you just love it when even disability advocacy caters to the stealth, able-bodied and without intellectual disabilities ideal? Haha. Well, that sort of explains why ever since I came full into being vocal about my physical disabilities I’ve felt like, “forbidden” from commenting on anything related to autism or taking any space within autistic communities.
I didn’t suddenly become less autistic. Same impairments and differences that I’ve always recognized in myself in relation to autism are still there, unchanged. The trauma of having grown up autistic around abusive allistics as well is very much still there.
I’m the same autistic person I’ve always been, I just no longer feel like the larger autistic community (at least the loudest parts of it) wants me around anymore, simply because now I recognize myself as physically disabled too and that is a little too much for them to want to deal with, let alone give a voice to. I’m not the embodiment of “normalcy” with just a bit of a quirk on the side that low support able-bodied autistics want to present to allistic society in order to save their own asses only.
I want more community with high support needs autistics, autistics who’re intellectually disabled, and autistics who’re physically disabled. I’m tired of autistic self-advocacy being dominated by the most socially acceptable members of our communities only and of them trying very hard to hide us.We matter too.
one day I’ll scroll lupus tag and won’t have to go through tons of generic wolf pics or furry art just to see like two relevant posts
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Fellow disabled people, what does a good day look like to you?
I’ll start.
Today is a good day. I woke up happy to be alive and my pain level is at a 5 on a 0-10 scale.
Stop trying to make disabled people feel bad for being loud and assertive about their needs.
We do not owe you simpering kindness or meek pleading in exchange for access, and you have no right to deny us just because you think we’re “rude”.
I’m desperate.
PLEASE fill out my survey if you’re 18-29 years old: https://hofstra.co1.qualtrics.com/jfe/form/SV_brUSTiewxEWVyTk?Source=Tumblr
ANYONE IN THIS AGE RANGE CAN COMPLETE IT, DISABLED OR NOT.
It’s for my dissertation.
I wouldn’t be asking if it wasn’t important. I need 109 more responses.
US ONLY.
Thanks so much!
ALTCutie with an IV?
(also I’m trying tumblrs alt text for my image description let me know if it works for y’all! I’ll go back to what I usually do if it doesn’t)
Hey y’all! So I’ve been getting IV infusions twice a month for POTS, and I feel like I’m always fussing with coats or sweaters trying to stay warm during them so I decided to make a sweater with IV access on the arms! I thought about getting one pre made but the ran around $60 so that was a no go. I was thinking about seeing if anyone wants one? I’d charge likely around $30 to cover material and labor and whatnot. If you’re interested please feel free to message me!
Image description:
{a light skinned person is visible in photo 1 and 2 from the neck to around the knees, they are wearing a navy blue crew neck sweatshirt and a white loose fitting long skirt. In the first photo the sweatshirt appears to be normal but in the second photo they are showing that the arm of the sweatshirt can be unbuttoned to expose the arm for IV access. In the third photo a close up on the sweatshirt arm and black clasp buttons are shown.}
End description
When you discover that something you thought was normal is actually a symptom and most definitely doesn’t happen in non-chronically-ill people
