It never hit me just how much physically disabled autistics are erased from all discourse and even advocacy for the autistic community until I saw someone mention us in a very brief shoutout to autistics who’re not your low needs more stealth and able-bodied ideal. But that thought has been living in my head loudly banging pots around me 24/7 since I saw that post.
Don’t you just love it when even disability advocacy caters to the stealth, able-bodied and without intellectual disabilities ideal? Haha. Well, that sort of explains why ever since I came full into being vocal about my physical disabilities I’ve felt like, “forbidden” from commenting on anything related to autism or taking any space within autistic communities.
I didn’t suddenly become less autistic. Same impairments and differences that I’ve always recognized in myself in relation to autism are still there, unchanged. The trauma of having grown up autistic around abusive allistics as well is very much still there.
I’m the same autistic person I’ve always been, I just no longer feel like the larger autistic community (at least the loudest parts of it) wants me around anymore, simply because now I recognize myself as physically disabled too and that is a little too much for them to want to deal with, let alone give a voice to. I’m not the embodiment of “normalcy” with just a bit of a quirk on the side that low support able-bodied autistics want to present to allistic society in order to save their own asses only.
I want more community with high support needs autistics, autistics who’re intellectually disabled, and autistics who’re physically disabled. I’m tired of autistic self-advocacy being dominated by the most socially acceptable members of our communities only and of them trying very hard to hide us.We matter too.
Me:* an autistic person vibing to a song and taking every word of the song literally. *
People: ACTAULLY THIS SONG AS A SUPER DEEP AND HIDDEN MEANING! YOU’RE A BAD/DUMB PERSON IF YOU DIDN’T INSTANTLY GET IT!! HOW COULD YOU NOT SEE THE SUPER DEEP HIDDEN MEANING?!
Saying “that’s karma” about people having disabilities or getting diseases is very ableist.
TW + CW: ableism
I saw two reddit posts today
1. A six year old girl gets a agressive form of cancer and may die.
2. A 11 year old girl gets paralyzed in a tragic accident
So what were people’s reactions??
Saying that’s karma because the parents, kids or someone tbe kid knows did something “ bad ” so people claiming the kids “ deserved ” such things..
I see this a lot. People claiming disabilities and illnesses are “ deserved ” and “ karma” because the person or someone they know did something bad…
Like it’s so messed up to say that such things are deserved and karma.
But also it has some really f×cked up underlying implications that people truly believe those with disabilities or illnesses are bad people that deserved it or in somehow karma.
its just so fucking unfair that disabled people need extra support but in order to actually get that extra support we have to have both the energy and ability to express ourselves to deal with the bureaucracy of getting that support and i just. i am so tired.
hi beautiful souls! i’m moving into my very own apartment that i’ve been waiting 6 months to be ready on Tuesday! i’m so grateful!!!
however, since it’s halfway through the month, i had to pay rent at my current place so i’m short on money. my dad was able to loan me most of it, but now i’m ~$50 short of moving.
i would ask my mom but she’s a narcissist and is abusive to me, so i really don’t want to talk to her, and i don’t think she’ll even help me. i have no one else to ask but you guys.
i’m so excited and so grateful that my new apartment is ready, i trust that everything will work out for me! if you’re able to help it work out and donate, my paypal, cashapp, and venmo username is amijo21 ..i just need $50!! please reblog if you can’t help by donating, thank you so much (✿^‿^)(◠‿・)—☆
hi beautiful souls, i hope you are doing well! i could really use some help.
i have been waiting 6 MONTHS to move into my new apartment. i’ve lived with my mom and roommates my entire life, this will be my very first own place where i can finally heal and be free. it’s ready to move in next week. i had the money saved up until yesterday, where i had 2 choices: pay part of the rent at my current place, or be evicted. i had to pay $300, making me that much short of moving. and that only covered rent until Feb 16th. i can’t afford to pay full rent here, so if i don’t move out by then, i will be evicted.
i asked my spirit guides what i should do, and they said i should ask online, and that i will find the money.
i need help raising $300 to move. i am disabled, and the gov doesn’t pay much for disability. i have no other way of finding the money, except social media. i would make a gofundme but they don’t give you the donations immediately, and i need them by Wednesday (Feb 16).
literally anything helps, if everyone donated $5 it would reach my goal in no time. i can’t be evicted, or it will go on my record and i won’t be able to find a place to live in the future. if you can donate anything, and i mean anything,my paypal, cashapp, and venmo are all amijo21
if you can’t donate, please reblog and help boost. if i am meant to get help, i will. thank you for reading.
hi beautiful souls, i am once again in a horrible position and cannot afford more groceries until dec 1st. i need help and have 2 options-
a) go back to my abusive narc mom and beg for money (which she will most likely not help and let me starve)
or b) beg for money on the internet
so i’m choosing option b first. my mental & physical health cannot take this, i’m disabled so i don’t have a job and no one’s hiring me bc of it. i lost a bit of weight last month bc i didn’t have food, it can’t happen again, i’m very sick.
i don’t want to go hungry again. if there’s anything you can do, even $5, please. anything is appreciated and can help.
if you cannot donate, please signal boost this. my posts don’t tend to get more than 3 notes, so i’m worried this won’t get far.
did the preliminary research, it does not appear to be a scam, the parent organization SciAccess grew out of conversations at scientific conferences about equity and inclusion in STEM. Both ZERO-G social media pages have confirmed the partnership
“The goal of this mission is to bring together the largest and most diverse group of disabled crew members in a weightless environment, with the hopes to learn how to adapt and make accessible outer-space travel for disabled space explorers, scientists, and researchers. The Mission: AstroAccess parabolic flight is scheduled to take place on October 17, 2021, launching from Long Beach, California.
“Our mission is to change outer space and change the world. If you are a disabled person who is confident, enthusiastic, playful, and literally willing to float upside down to change the future, we are looking for you!” says Dr. Sheri Wells-Jensen, Associate Professor of Linguistics at Bowling Green State University.”
There is an impressive team behind AstroAccess, you can find the full list on their site here.
Here’s a couple of those bios.
“Anna Voelker is the founder and Executive Director of the SciAccess Initiative, an international program dedicated to advancing disability inclusion in STEM. Through SciAccess, they lead numerous science inclusion initiatives, including an annual conference launched by their receipt of the 2018 Ohio State University President’s Prize. Anna specializes in accessible space science outreach for diverse learners and has worked extensively with blind and low vision students using 3D printing and data sonification. In June of 2021, Anna joined the Aspen Science Center as its new Executive Director. Anna is a 2018 Brooke Owens Fellow and previously worked at NASA Kennedy, NASA Goddard, the Space Telescope Science Institute, the International Astronomical Union’s Office of Astronomy for Development, and the Aerospace Corporation.”
“Eric Ingram is the Founder and CEO of SCOUT Inc., a company de-risking space operations with sensor suites that enable spacecraft to see and understand the area around them. He also currently serves on the Board of Directors for the Space Frontier Foundation. He was previously an Aerospace Engineer for the Licensing and Evaluation Division of the FAA’s Office of Commercial Space Transportation, where he gained expertise in the regulatory environment. Prior to this, Eric was an engineer for Deep Space Industries, where he designed cubesat subsystems for testbed missions. Outside of the space industry, Eric previously served as the President of the United States Wheelchair Rugby Association, leading the USWRA to its largest budget surplus in its 30+ year history. Eric has competed in the sport of wheelchair rugby for 15+ years, competing domestically for several club teams, and internationally with the US Developmental team. Eric holds a Bachelor of Science in Physics from Old Dominion University, most of a Master of Science in Electrical Engineering from the University of Houston, a sport pilot certificate, and is working towards SCUBA certification.”
“Dr. Sheri Wells-Jensen is an associate professor of linguistics at Bowling Green State University in Bowling Green, Ohio. Along with various aspects of astrobiology, her research interests include social aspects of human colonization, disability, the relationship between language, embodiment and thought, language evolution and ways in which alternative sensory inputs could influence the evolution of scientific thought. She is on the board of SOCIA (Social and Conceptual Issues in Astrobiology and METI (Messaging Extraterrestrial Intelligence) International.”
“Dr Jamie L. Molaro is the Executive Director of Disabled for Accessibility in Space (DIAS). Dr. Molaro is a planetary scientist at the Planetary Science Institute and located geographically with host institution the Caltech/Jet Propulsion Laboratory. Her research focuses on understanding the way that rocky and icy materials fracture and break down, driving landscape evolution on asteroids, comets, and moons. She is also a team member on NASA’s OSIRIS-REx mission to retrieve a sample of rock from an asteroid surface. Service is an integral part of Molaro’s career, including organizing and running exhibitions and workshops on science and data-driven art, and leading DAIS (Disabled for Accessibility in Space). DAIS is a peer networking, support, and advocacy group for disabled and chronically ill people in space science and related fields and professions, and proud collaborator in Mission: AstroAccess.”
What do you mean disabled people can’t be superheroes/secret agents/super spies? Mate as soon as I’m in that wheelchair in public I’m bloody invisible I could get away with whatever the heck I want people actively avoid looking at me why is no one using this in their stories
4 years ago, I was sleeping about 4 hours every night. Many of my closest friends at the time had, or were in the process of, leaving me and I would cry from the loneliness. I was fighting with my parents and wanted to leave home. They thought I was exaggerating and attention-seeking. Every appointment ended with “we can’t help you” or “there’s nothing wrong with you” or medications that made me worse, to put it lightly. More than once I wanted to end it
This morning, I woke up after sleeping for 9 hours in a room built by my dad specially for me, so I would have a space for me if I stay at home longer because of my health. I texted my best friend who yesterday asked me to be her bridesmaid. Before asking me, she spent weeks making sure it would all be accessible and fun for me, not stressful. My mum brought my medication in for me, ones that actually make me feel better, and asked how I was feeling. Later I’ll text one of the members of my lovely and amazingly supportive medical team to see when we can video call. We always have tea when we call, and cookies or a cupcake- food doesn’t scare me so much anymore. Every appointment ends with “you’re doing so well”. I haven’t hurt myself in years, I actually stopped counting, and when it all gets too much I know I have people I can talk to and strategies prepared to get through it and it will pass. Life is still hard. But it keeps moving, and I’m so grateful.
I don’t know who needs to hear this, but it will be ok. It might not be now, and I don’t know when it will be, but it will be. It doesn’t all happen at once. Things are still hard. But one day you’ll wake up and be so glad you didn’t leave, because you would have missed these moments of happiness and love, and some of them-probably more than you realise- wouldn’t have been possible without you.
hi beautiful souls! i’m moving into my very own apartment that i’ve been waiting 6 months to be ready on Tuesday! i’m so grateful!!!
however, since it’s halfway through the month, i had to pay rent at my current place so i’m short on money. my dad was able to loan me most of it, but now i’m ~$50 short of moving.
i would ask my mom but she’s a narcissist and is abusive to me, so i really don’t want to talk to her, and i don’t think she’ll even help me. i have no one else to ask but you guys.
i’m so excited and so grateful that my new apartment is ready, i trust that everything will work out for me! if you’re able to help it work out and donate, my paypal, cashapp, and venmo username is amijo21 ..i just need $50!! please reblog if you can’t help by donating, thank you so much (✿^‿^)(◠‿・)—☆
hi beautiful souls, i hope you are doing well! i could really use some help.
i have been waiting 6 MONTHS to move into my new apartment. i’ve lived with my mom and roommates my entire life, this will be my very first own place where i can finally heal and be free. it’s ready to move in next week. i had the money saved up until yesterday, where i had 2 choices: pay part of the rent at my current place, or be evicted. i had to pay $300, making me that much short of moving. and that only covered rent until Feb 16th. i can’t afford to pay full rent here, so if i don’t move out by then, i will be evicted.
i asked my spirit guides what i should do, and they said i should ask online, and that i will find the money.
i need help raising $300 to move. i am disabled, and the gov doesn’t pay much for disability. i have no other way of finding the money, except social media. i would make a gofundme but they don’t give you the donations immediately, and i need them by Wednesday (Feb 16).
literally anything helps, if everyone donated $5 it would reach my goal in no time. i can’t be evicted, or it will go on my record and i won’t be able to find a place to live in the future. if you can donate anything, and i mean anything,my paypal, cashapp, and venmo are all amijo21
if you can’t donate, please reblog and help boost. if i am meant to get help, i will. thank you for reading.
I get cash back (not points) on online shopping with Rakuten. Consider signing up to save! Get a $40 bonus when you sign up with my invite link and spend $40. It’s like getting a $40 purchase for free! https://www.rakuten.com/r/TRUEIM28?eeid=6991100
Today’s Plasma Exchange was painful and tiring but went well overall. I am very much one big bruise now though, and am preparing for more pain tomorrow.
They’re running out of insert options currently, so I’m getting bruises on top of my bruises. Literally. Apparently it’s a steroids thing? It’s very easy for the needle to slip and cause pain because your connective tissue is weaker.
But I am feeling more spirtely though! I am “god it’s been a long day” tired, rather than “my body hates me” tired and that’s quite refreshing!
But yeah, last one tomorrow and then we shall see how I fare in the weeks to come! I feel like this has done more for me than any of the steroids did. It just also happens to be a more exhausting procedure.
My specialist was also meant to come see me at some point this week but hasn’t so goodness knows what is happening there ¯\_(ツ)_/¯
It’s not like I have anything better to do when I’m lying in the bed with my arms stock still on two pillows unable to move a fraction of an inch in case something moves the wrong way. Other than listen to Discworld Audiobooks.
There was a popular post that went around two years ago that said something along the lines of “we have to be willing to look paranoid–it’s better to be overly-cautious than to be careless and prolong the pandemic!”
It’s pretty much the only thing holding my sanity together now that it’s year three of the pandemic, everyone’s decided it’s over even though it’s still killing people, local data suggests my area is under-reporting new cases, and people keep telling me VERBATIM that I’m being “overly cautious” and “kinda paranoid.”
The 7-day global death average on March 1, 2020, when everyone was terrified and started shutting everything down, was 75.
The current 7-day global death average as of today is 2,283 according to the updated graph I just looked at.
But sure. It’s “over.”
Horrific and that’s not even taking into consideration other consecuences of this pandemic regarding public health. Complications and sequels from Covid are a very real and under researched issue that’s leaving a lot of people literally disabled.
Hospitals are even more collapsed than they were before the pandemic, working under new protocols and chronic patients aren’t able to take exams, blood work and proper care for their conditions. No one is taking into consideration their deaths and worsening of their condition as another consecuence of the ONGOING pandemic.
Oh god it was so nice to wake up this morning and realise that I didn’t have to go and get needles stuck in my arm!! And won’t have to do it again for another 8 weeks =D
I am incredibly purple now though. My skin matches my Batgirl Hoodie. It’s quite impressive. This is an issue though because my Sister’s Wedding is in 10 weeks and if I have my next Plasma Exchange in 8 weeks then I’ll probably still be purple from that in all the wedding photos… might have to try and find some decent cover up. Not that there’s any shame in bruises, just that they aren’t exactly pleasant to look at!
I am already feeling more spritely following the procedure though! I bent down to pick something up off the floor and was able to get up again without having to yell for my Mum! Which is a BIG improvement.
That said, when I took down the washing from outside earlier I was incredibly breathless afterwards and had to sit down. However I didn’t drop anything or collapse so that’s a good sign!
Hopefully I should improve more over the next few weeks, and then obviously I’ll get worse again but hopefully not as worse as I was before? The goal being to always get out the bad antibodies BEFORE they overwhelm the system.
I’ve been contemplating getting a Rollator recently, because it’s been getting so bad. We’ll see how it goes, but maybe if we keep the treatment up I won’t have to get one? Not that there’s any shame in using one, but just that I would rather not have to since they come with so many issues of storage and problems with getting on public transport etc. I mean, I’m also aware that my solution to not having to use a rollator is to get incredibly invasive treatment every 8 weeks but I guess that goes to show how much internalised ableism I’m living with lol
I’m gonna put things to the test in a couple of weeks and see if I can manage a trip into town to go pick up comics. Obviously in the middle of the day when there will be fewest people about, since you know – no immune system.
But the easiest way to see if your body still hates you or not is to push it to the things it didn’t complain about before!
And if I DO collapse well at least I’ll be near the hospital when I do lol
[ID: Photo is a tweet from Wonder Cripple (twitter handle: @wonder_cripple). The tweet reads:
“When an abled person tells you you’re an inspiration, ask them why. Seriously. Ask them, and watch them rack their brains for an answer. They’ll understand the problem when they can’t come up with one.
ID: [Photo is a tweet from Wonder Cripple (wheelchair emoji) Twitter handle: @wonder_cripple]
The tweet reads:
Stop blaming terrible behavior on mental illness or disability. I don’t care who you’re talking about. I don’t care if it’s @realDonaldTrump or a school shooter. It’s fearmongering, and IT WOULDN’T EXCUSE THEM.
lol @ how abled people park in disabled parking spaces, but have the audacity to scream at ambulatory disabled people for doing so because “that space isn’t for you!”
Abled privilege is being able to do something or go somewhere completely spontaneously, without having to plan everything out three weeks in advance or make a million contingency plans.
Why I will never be on board with the bullshit rationale for reopening schools right now.
I “needed to be in school”. They didn’t care.
My pediatrician had to write a letter for the school to grudgingly let me come back.
If you can kick up such an ableist fuss over a broken leg, you can keep kids and teachers safe during a deadly global pandemic. End of discussion.
Photo is a tweet by @wonder_cripple that says:
“When I was 12, I broke a leg. My school *insisted* my mom keep me home until it healed because I already needed 24/7 care as a disabled person. They labeled me a liability.
And you’re telling me schools are fine to open during a global pandemic?
