#chronic illness

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a person with is taking a selfie in a bathroom mirror, they are holding on to an IV pole and have an IV attached to their armALT

Cutie with an IV?

(also I’m trying tumblrs alt text for my image description let me know if it works for y’all! I’ll go back to what I usually do if it doesn’t)

I just read a post on Instagram that started with

Shout out to people who:

- have symptoms

and then there was more but my brain went blank for no reason and it made me laugh so

ya know

shout out to people who have symptoms

Striking the careful balance between looking attractive for a doctor appointment so that the doctors want to help you while also not looking toogood so that the doctor doesn’t take your pain or symptoms seriously because “you look fine”.

I’m going out of town with my partner and two of his friends for a multiple day trip soon and I’m so nervous. So very, very nervous.

What if I hurt myself and end up in a flare while we’re out?

What if my pain starts getting bad and I can’t control my mood?

What if they feel like they can’t do what they want because I can’t do certain things because of my pain levels/mobility issues?

What if my brain fog gets bad and I say something silly without meaning to?

I have done a lot of traveling as someone living with chronic pain, mobility issues, chronic illness, etc. But it has almost exclusively been with family or people that I’m really close with.

(I am also an ambulatory wheelchair user and that brings its own brand of anxiety.)

If you have any tips on not stressing myself into a tailspin before we go please let me know! I am going to do my best and the people I will be with are really great. I just want everything to go as well as possible.

yes I’m afraid of doctors. they can talk about pee at length without laughing. unnatural.

[ID: a comic styled as an illuminated manuscript. /1: Text: “Waiting for the physician:” Panel depicts a person lying face down on the ground saying “ooooooough help” in scribbled writing. /2: Text: “Seeing the physician:” A tall, imposing doctor walks on frame and the person stands up, saying: “I am feeling fine” /3: The person turns around and says: “Wonderfully well!” /4: They say: “I daresay I have ne'er once been better!” and start running off frame as the doctor stands still, looking annoyed. /ID]

breaking: bottling all your feelings up and letting them stew and boil actually isn’t a mark of strength

[ID: a 4-page comic in illuminated manuscript style. /1: Text: “O, to be strong as the lion” Panel depicts the lion rampant, a heraldry symbol of a lion rearing up and roaring. /2: Text: “who suffers his pain /without a single complaint.” Panel depicts the peasant character standing to imitate the rampant lion pose, looking unimpressive but determined. /3: They continue the pose, but they look worried as they start shaking and sweating. /4: They lean forward, dejected, with tears in their eyes. Text: “wauUGh /But it HURTS though!” /ID]

thoodleoo:

thoodleoo:

sorry i cant come over today. it’s the whole eagle pecking out my liver thing. tomorrows not good either. yeah it’s the eagle again, im kind of booked up for a while actually

annieelainey: Its the first day of Pride month and I want to remind my LGBT+ fam that Pride is often

annieelainey:

Its the first day of Pride month and I want to remind my LGBT+ fam that Pride is often not accessible and excludes our disabled LGBT+ siblings ♿️‍⁣⁣⁣
⁣⁣⁣⁣
What if you were no longer allowed entry into your favorite gay bar, or safe space/shelter, or queer coffee shop, or queer concert, gallery, show?⁣⁣⁣⁣
⁣⁣⁣⁣
These spaces are denied to disabled LGBT+ people all the time due to inaccessibility and ableism. ⁣⁣⁣⁣
⁣⁣⁣⁣
Whether it’s a step at the entrance, a staircase and no elevator, no sign language interpreters, no sensory-friendly spaces, no allergy-friendly food options, or a bouncer not allowing someone with a service dog inside because they ask for documentation that doesn’t exist (yes, really happened), this ignorance and discrimination is unacceptable.⁣⁣⁣⁣
⁣⁣⁣⁣
It starts with hiring us as organizers, it starts with integrating us into the spaces where we belonged all along. It takes the work to unlearn ableism and misconceptions about disability, it takes effort and care to make our spaces accessible. Pride is for all of us, not some of us.⁣⁣⁣⁣
⁣⁣⁣⁣
#AccessIsLove #MakePrideAccessible #TheFutureIsAccessible⁣⁣⁣⁣

https://www.instagram.com/p/ByK6KfsgqGC/?igshid=qqbzrr0c9u6g


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devinsturk:

15 Proverbs for the Fellow Chronically Ill 

  1. May your symptoms flare during your diagnostic testing.

2. If spoons are in short supply, one must make do with knives.

3. May you have access to healthcare that is both affordable AND good quality.

4. When your doctor will not order a test you have a gut feeling you might need, request that they note their refusal in your chart.

5. May your online patient portals sync appropriately.

6. May your healthcare providers always take you seriously.

7. May the phlebotomist get a good vein on the first try.

8. In times of distress, permit yourself comfort whenever you can.

9. If you want it, may you find humor in anything you can.

10. May you find community when you least expect it. Even a Twitter hashtag or Facebook group can offer solace when medicine has none for us.

11. If another non-disabled person tells you to “just do yoga,” feel free to flip them off. Or let them know they owe you 20 bucks. Or both.

12. May your injections be swift, and may your tablets be easy to swallow.

13. May the unwanted side effects of your treatment be minimal or nonexistent.

14. A life from bed is still a life.

15. You are the expert on your own experience.

Feet… Not good.

penis-peeper:

chronic illness mood of the week

Drained exhausted tired and depressed . Pain burning fire a whole other story and just as depressing .

Chronic pain problems

All the bloody time!

Chronic pain problems •

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