#chronicpain
PSA to all AS Warriors to remember what their fellow AS warrior Jamie Coman said—>
“I have had ankylosing spondylitis for 15 years, along with a few other diseases. People often say I don’t look sick, or you’re too young to have that many things wrong with you. My name is Jamie Coman, and I’m a rock star!”
AND YOU ALL ARE!
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JOY OF JOYS, #ehlersdanlossyndrome subtype testing *finally* achieved. (IT ONLY TOOK MOST OF A FREAKIN’ DECADE.) Now… I overnight this to the University of Washington’s Collagen Diagnostic Lab ¹ And then… we wait.
____ ♥️♥️♥️♥️♥️ ⁉️⁉️⁉️⁉️⁉️
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#ZebraStrong #ZebraPersistent #autoimmunedisease #nevergiveup #chronicpain #chronicillness
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FUNDRAISING OPPORTUNITY #2: Chronic Readers Club Patreon!
If you would like the opportunity to provide Chronic Readers Club with consistent, monthly support, while also receiving exclusive benefits, then consider becoming a patron on Patreon!
Patreon is a site that allows creators to provide monthly benefits to their supporters. Through Patreon, you can provide the program with more consistent funding, while also having the flexibility to pause or cancel your patronage at any time!
Chronic Readers Club accepts monthly donations beginning as low as $1, which will provide you access to patron-only news and updates about the program, as well as a personal thank you from me, the creator of the program! And it only gets better from there! At $5 a month, you’ll get a shout-out on our Facebook page in addition to the other benefits already mentioned! At $10 a month, you get access to the monthly Chronic Readers Book Club as well as everything already mentioned! And if you donate $20 a month, you’ll receive all the benefits already mentioned, as well as a list of the books sent in the packages each month, AND an official Chronic Readers Club bookmark and sticker set, just like the ones sent in each package!
As I mentioned, Patreon is a platform that provides more consistent funding for the program on a monthly basis, which I completely understand isn’t something everyone is capable of! The next fundraising opportunity will share more about one-time donations! But if you’re able and would like the additional benefits, becoming a Chronic Readers Club patron is a great thing to consider!
Check out patreon.com/chronicreadersclub for more info or to become a patron!
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Wearing my chronic reader crewneck! ❤️ This is definitely my favorite sweatshirt! It’s sooo comfy and soft on the inside! I also own a chronic reader t-shirt, which is just as cozy! These shirts are perfect for anyone who is chronically ill and looking for cute yet comfortable clothes! They also make amazing gifts for any bookworms in your life! Available for purchase through November 3rd and delivered before the holiday season begins!
bonfire.com/chronic-reader
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FUNDRAISER OPPORTUNITY #1: Chronic Reader Shirts!
“Chronic reader” shirts are available again! These shirts make the perfect gift for all the bookworms in your life! The shirts will be available the entire 2 weeks of the Chronic Readers Club fundraiser, through November 3rd!
The design is available as:
- t-shirt: $20 - heather gray, charcoal, black, light pink, and maroon in sizes XS-3XL
- crewneck sweatshirts: $30 - black, heather gray, maroon, light pink, and gold in sizes S-3XL
- v-neck shirts: $22 - heather gray, black, and charcoal in sizes S-2XL
- hoodies: $32 - heather gray, black, maroon, light pink, and gold in sizes S-3XL
- youth t-shirts: $18 - heather gray, black, maroon, light pink, and gold in sizes XS-XL
All the proceeds go directly to funding the remaining 18 packages that need sent to those still on our waiting list for 2019!
To order yours, visit bonfire.com/chronic-reader!
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Get your #salty dysautonomia awareness shirt in time for Dysautonomia Awareness Month next month! Available as t-shirts, v-necks, crewneck sweatshirts, and youth t-shirts in various colors and sizes! Only available for 3 more days!
I said what I said.
Hello everyone! As many of my followers already know, I started a program called Chronic Readers Club in April of 2018. Chronic Readers Club is a program that sends care packages to young people who are chronically ill containing a book from their personal wishlist, as well as many other goodies!
The good news is that the program has been incredibly successful, in that I’ll be sending out our 50th package in September, and more applications for packages are constantly pouring in! Unfortunately, that’s where the bad news comes in.
Chronic Readers Club needs your support! I run this program all by myself, and I am also chronically ill. I’m only able to work about 10 hours per week, which leaves me with little extra money. I’m so fortunate to have the support of the current patrons on the Chronic Readers Club Patreon (shoutout to Kaiti, Kathy, Mary, Stephanie, and Kerri!), and they have truly kept this program up and running!
But they can’t do it alone! And with the program’s consistent growth, I’m just not anywhere near keeping up with the applications coming in. As of now, everyone who applies for a package receives one, and I want to keep it that way. But some people have had to wait up to 6 months to receive their package, and in that time more and more people are applying! I may have to close applications again for a time, but I’m trying to avoid that!
I’ve been too ill this year to consistently keep up with advertising ways to help Chronic Readers Club, but I’m doing my best and will continue trying as best I can to provide different ways to support this program, because it’s something I deeply enjoy doing, and it’s something that’s truly helping people. One sweet chronic reader was kind enough to reach out after receiving their package to say “this cheered me up when I needed it most.” And that’s why I do this!
With that being said, one of the most helpful things you can do to support Chronic Readers Club is to become a patron on Patreon! When you become a patron, you get all kinds of cool benefits along with knowing that you’re supporting an awesome program! For more details on the benefits you get, check out our Patreon page!
Another way to help Chronic Readers Club is by donating either bookstore gift cards or small items! This can be done in a few ways. If you’d like to donate a gift card or small items you have (new items such as notebooks, stickers, erasers, pens, pencils, sticky notes, socks, lip balm, face masks, nail files, etc.!), please email me at [email protected] or feel free to message me on here! Or, you could purchase something from our Amazon wishlist!
Another way to support the program that’s super fun for everyone is by buying a Chronic Reader shirt! Any proceeds go back into the program, and you get a cool shirt!
Any and all support is appreciated, even if it’s something as brief as sharing this post! Thank you to all who have supported this program so far!
Wishing you low pain and peaceful reading,
Megan <3
A post for when you don’t know what to say.
https://www.warriorgoddessmusings.com/blog/dont-know-what-to-say
Warrior Wishes Holiday Cards
I’m doing a thing for the holidays! And I know it’s kinda early, but I wanna start sending cards out at the beginning of November!
This time of year can be really difficult for many people, so I’ve designed cards with lots of love to remind you that you’re important and cared for this holiday season! Each card will come with a hand-written message and some small fun stuff, like stickers, sticky notes, bandages, and other stuff like that.
You can sign up to receive a card yourself or you can nominate another warrior! Open worldwide! I have a limited number of cards available though, so be sure to sign up right away!
https://goo.gl/forms/4eOEPL3WBz2bsKc53
NOTE: If you want to receive a card yourself AND nominate someone else, please fill out the form two separate times — one for each!
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NEW BLOG POST!
Top 10 Drugstore Beauty Products Under $10 Each:
1. Yes To Cucumbers soothing eye gel [$8]
2. Batiste dry shampoo [$8]
3. Garnier Fructis strengthening treat hair mask [$3]
4. Queen Helene cocoa butter face and body cream [$3]
5. Wet n Wild makeup remover towelettes [$3]
6. Noxzema classic face wash cream [$4]
7. Nugg hydrating face mask [$4]
8. Herbal Essences tousling spray gel [$3]
9. Garnier skinactive miracle anti-fatigue sleeping cream [$8]
10. Formula 10.0.6 on your mark blemish mark fader [$9]
https://www.warriorgoddessmusings.com/blog/10-drugstore-products-under-10
I was recently yelled at by a man driving by as I was walking into a Starbucks after parking in a handicap spot. “Liar! Liar!” My first thought was “you weenie come back and say that to my face!” Then the shame set in. For awhile I felt guilty of…something. I know I’m sick but I know I don’t look sick, so maybe I don’t deserve my placard? It’s confusing and I understand. But then I reminded myself that 96% of chronic illnesses are invisible. Just because I look fine doesn’t mean my illness goes away or isn’t serious enough to be disabling. It’s not me that’s somehow confusing or misleading, it’s society and our expectations and stereotypes. Sick doesn’t have a look and neither does disabled. This idea that to be valid your illness or disability must be visible is ludicrous when you learn how many people are suffering from something unseen. Society needs a major reform in many ways, but especially with respect to its treatment and expectations of chronically ill and disabled people. What we really need is to just stop being so dang judgmental in general! Was it ever any of his business where I parked or if I “deserved” my license plate? No sir! All that I ask of people at this point isn’t even kindness, just neutrality or even indifference! Let me be! Can I just get my chai in peace?!
TW ⚠️ suicide
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So I wrote a thing that I felt like sharing for the first time in quite awhile. I always find it sort of ironic that September is both Suicide Prevention Month and Pain Awareness Month, but that we rarely talk about suicide prevention in the context of chronic pain. And I shared my thoughts on Twitter about Suicide Prevention Month and how a lot of the campaigns for it don’t resonate with me as a chronically ill person. The tweets got a much larger response than I was expecting, so I took some time to write a full-length article elaborating on my initial tweets (which are included in the article). Basically I just expressed that I don’t feel seen or heard by the insistence that “it gets better.” In this article, I share the ways that I cope with my own feelings of depression, and the things that help me continue choosing life even when I know it might not get better. Please feel free to share if you feel this may be helpful to someone else!
If you’d like to support my program, Chronic Readers Club, and its mission to help provide books to young chronically ill people, pledge to be our patron on Patreon! If you sign up anytime from now through January 5th, you’ll receive a FREE “chronic reader” pin on top of all the benefits we already offer! Donations start as low as $1 per month! We are grateful for any help!
In 2018, I started a program called Chronic Readers Club. The program sends care packages that contain books to young people who are chronically ill! To qualify for a package, you must love to read, be chronically ill, age 30 or under, and living in the contiguous United States. If that’s you and you’d like a free book from your personal wishlist, apply now! This year, I was finally able to create a separate website for the program, so if you’d like to apply, or for more information on the program, visit chronicreadersclub.com! And please feel free to share this post to spread the word about the program!
On this last day of the Chronic Readers Club fundraiser, I just want to say thank you. I am so happy to share that over the past two weeks, enough money was raised to purchase every chronic reader on the waiting list a book and to ship every package!!! And so many additional items have been donated to include that will make these some of the most fun packages ever! So thank you, from the bottom of my heart, to everyone who has been kind enough to donate in any way! I am so appreciative of your generosity, and I’m so excited to get these packages sent out! ❤️
P.S. You can still order a “chronic reader” shirt through today but this is the last day! So if you want one, be sure to order soon! bonfire.com/chronic-reader
FUNDRAISING OPPORTUNITY #7: Spread the Word!
The final way you can help Chronic Readers Club is by spreading the word about the program and the good it does!
Even if you aren’t able to donate, please feel free to share any and all posts from this fundraising venture!
I am so incredibly appreciative of every kind of support this program receives, not just monetary support!
And I want to thank everyone who has already liked and shared these posts! Your kindness has not gone unnoticed! ❤️
Sure, I’ll just add these to all the other medications I take
#chronicpain #chronicillness
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Helping to spread the word along with my Sissy @ghdcanada and other members of my #chronicillnessfamily
#painawarenessmonth #chronicpain #chronicillnesses #chronicillnessawareness #chronicpain #chronicillnesswarrior #spoonies #spoonielife #spooniewarriors #spooniestrong
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