#trigeminal neuralgia
I haven’t had to update this in a while, which has been good, in this case no news really has been good(ish) news.
So what’s happened since last April? To sum up:
> I caught so many bugs it was unbelievable, but none of them caused any hospital visits and as my immune system regained its strength I did stop catching everything.
> I have Trigeminal Neuralgia & take Carbamazapine to stop it from causing me pain, which coincidentally has also seemed to help my back problems.
> I still have to use crutches every so often, but much less than I was starting to use them.
> I’ve had 3 mysterious skin allergic reactions (as shown in previous post), around 10 issues with my eye - itching/pain - that was stopped by piriton - & now have very dry skin/eczema on my eyelids (Aveeno cream clears it up within 24 each time). The GP I saw has suggested that this is all an allergic reaction to the TN meds, but the TN is definitely still worse than all of that. I’m yet to see if my neuro agrees…
> I had a 2 week spell of headaches behind the eyes couple with some mild vertigo recently, but optician couldn’t find an issue, neither could the GP. Again, yet to really bring it up with anyone on the MS team.
> Fatigue, stiffness and memory issues are unfortunately still ever present, but I think they might be something that stick with me for ever to be honest.
> There have (of course) been other issues here & there, but right now none spring to mind…
First things first, my 6 month lymphocyte count is 0.9 - nearly within ‘normal’ range according to my neurologist and is definitely a good thing.
My appointment gave me the opportunity to bring up a few things I’d been worried about/experiencing. Nothing too bad, just a few things that may need more attention next year.
I was also able to catch up briefly with Mark (we had Lemtrada at the same time) which was good. He’s doing well too. We both have to have the Flu jab this year - something I’m definitely not looking forward to.
I’m now taking 50 mg of Carbamazapine twice daily to help with the trigeminal neuralgia - something which my neuro said was a MS thing, but when someone with MS has it, it’s a bit different (it’s caused by the demyelination). It’s being caused by one of my original lesions, so nothing to worrying about on that end (in other words: it’s not new).
It turns out that the face pain I’ve been having is something called trigeminal neuralgia. It had become more frequent so I finally went to the doctors. It isn’t necessarily to do with MS or the treatment, but it is VERY common in MSers. At the moment I’m not taking anything for it but we’ll see a couple of weeks from now.
In the middle of another #TrigeminalNeuralgia flare. Cue Norman Reedus Edits #NormanReedus #bbhfanart #normanreedusedit @bigbaldhead
In the middle of another #TrigeminalNeuralgia flare. Cue Norman Reedus Edits #NormanReedus #bbhfanart #normanreedusedit @bigbaldhead
