#chronic
You know you have pots when you can barely stay upright during the day but start to feel somewhat functional again after 10pm
At the end of the day only you know how unwell you are and what you are capable of, or not
Unfortunately when we are diagnosed with chronic illness instead of receiving the care and nurturing we need we often need to fight for ourselves instead
Keep fighting
Stay strong
You will get through this
“Pain that persists is terrifying because it sets off the amygdala, before the parts of the brain that modify our emotional responses can be turned on.
The result is that we re experience the trauma that caused the pain and this trauma is continuously reinforced by it.
The terror demoralises us, and as pain processing areas expand in our brain, we lose our full ability to problem solve, regulate emotions,resolve conflicts, relate to others, distinguish other sensations from pain, effectively plan and even remember our past experiences to control pain.
Every time a person worsens, it feels like it is here to stay, and we must avoid it at all costs.
The amygdala is not a place of moderation.
It is a place of extreme emotions, fight/flight and post traumatic stress disorder. ”
Norman Doidge, the brains way of healing
IMAGINE how much better you would’ve felt if your doctor had explained pain and how you were feeling like this instead of telling you not to think about it. I wish I knew this when I was begging for help, traumatised by my pain
The worst is when you are toasty and warm about to fall asleep and then get up to brush your teeth
Get back into bed, turn off the lights and…
Feel like you can run a marathon all of a sudden
When you have a mixed bag of chronic conditions and are flaring but not sure which one is flaring so you take a medication hoping it will alleviate all 12 invisible illnesses
