#saytheword
Beauty is an anesthetic//
Wellness is a commodity//
Be who you are and take up your space #HospitalGlam
[#imagedescription: I’m clad in black with blue lips on a medical bed. My gaze is directed towards someone offscreen. Yours is directed at me.]
#disabled #saytheword #disabledandcute #invisibleillness
https://www.instagram.com/p/Bp_U6F7HJpp/?utm_source=ig_tumblr_share&igshid=1oy2arlizdwie
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Caption from sitting_pretty on Instagram:
When I was a little girl, I saw myself as beautiful. Like fairy-princess riding a glass carriage to the ball kind of beautiful. I woke and ate and dressed and played and slept believing this.
When I got a bit older, I started to pick up on the way people looked at me. They rushed to help me, seemed sad or even proud when I smiled, and stared at my paralyzed legs. I noticed that none of the fairy-princesses on the screens looked anything like me. And this is when I started to piece it together – girls that looked like me were usually pitied, could maybe become inspirational, but were never beautiful. So I found ways to hide myself, obscure my imperfections, point the camera away from my paralyzed legs.
But here I am, thirty years old, finding my way back to the little girl who saw herself as beautiful, who wasn’t afraid to put on a lacy floor-length dress, just to go to the library, who didn’t try to hide, who felt worthy of admiration. Day by day, I am building my beauty uniform – the space I slip into that invites me to relish in my own particular beauty, to be seen without shame.
No caption from irina.vargas on Instagram.
This is a painting my friend Mandy painted of me from a self portrait during a hospital stay just over a year ago. While a hospital stay isn’t necessarily a normal part of life for most people, Mandy reposted it to bring awareness to the DisabilityIsNormal project.
I strongly believe it should be normal for disabled people to be depicted in all forms of art and media. While my personal opinions on what constitutes ‘normal’ are complicated and I don’t believe we should have to strive to be ‘normal’, I <b>do</b> think that disability should be (and is) a normal part of life for everyone in the world.
This will only be acknowledged and true when everyone stops ignoring disability. With movements like #SayTheWord, #DisabilityIsNormal and the various campaigns to get real, honest disability representation in the media, we will get there.
Via Twitter user @ babeelincolnn
“Clothes shopping yesterday!”
https://twitter.com/babeelincolnn/status/719271103198294016
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I’ve been busy starting a new YouTube channel (more on that later!). Essentially, a large part of it is wanting to share my experience of the world but also to try and normalize disability! ( https://m.youtube.com/channel/UCnETew92-OPnj4w2S-03a0g)
Which brings me on to my point! I started a new tag! #DisabilityIsNormal I’m going to be using it on YouTube and all platforms I can get my grubby mitts on. Disabled friends, feel free to tag your photos, posts, videos, everything of you doing normal things, just the same as everyone else! Let’s normalize disability together. Let’s show the world we exist, from our own perspective, and we are people just like everyone else! Take up space in the world with me! Let’s make everyone else start to acknowledge that we exist and our experiences are real and valid.
{please don’t remove my words}
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We can not simulate freedom. The Americans with Disabilities Act (ADA) was signed into law in 1990 to protect us from discrimination based on ability, and to allow us to move through the world independently. A bill dismantling it, #HR620, sailed through the House of Representatives and will soon be on the Senate floor for a final vote. We need your help to keep our civil rights intact.
Contact your senators now and urge them to stop the passage or #HR620, which would make it nearly impossible to enforce our rights under Title III of the #ADA to access public accommodations. Do not let them pass this, or any legislation like it.
#HospitalGlam #Disabled #SayTheWord #SaveTheADA #StopHR620 #chronicillness #disability #civilrights #callyourreps [#imagedescription: #HospitalGlam photo in which I am reclining on a medical bed, wearing a black leather skirt and a T-shirt that reads “On ne peut pas simuler la liberté”]
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