#orthostatic intolerance

LIVE

You know you have pots / OI when you are the most capable, motivated person when lying down but as soon as you get up its a whole different story

chronicallyjessica:

Me, someone with POTs, everyday

[ID: Gif of Stanford Blatch from Sex and the City sat on a sofa saying “This morning was good. But then I got up.”]

Literally me this morning

Coming good now though at 10.30pm

You know you have pots when you can barely stay upright during the day but start to feel somewhat functional again after 10pm

disabilityisnormal:

Please submit photos, videos, illustrations, visual posts that show your real life, every day experience of the world as a disabled person. Whatever that may be! It can be anything from mundane every day things, your fashion, your selfies, your food habits, the things you enjoy doing, to the adventures you go on, basically anything anyone would ever share about themselves. It doesn’t have to be a 100% positive experience, though, as that is not real life. Any emotion, any experience. I’m interested in presenting what it is like for disabled people to live their lives.

Photos, videos etc. should probably include you, a part of you, or your actual Point of View to be a true depiction of you and your experience. They should also be clear, the subject matter should be recognizable, and relatively interesting to look at (if not downright hilarious commentary on the mundaneness of living life as a human being). If we want this project to make a difference it should be something that all kinds of people want to look at.Let’s burst out of our echo-chamber and refuse to be ignored!

Whatever else, you should be presenting yourself and your experience how YOU want to be presented. This is about both education and empowerment. I’m not here to dictate how you depict your life and what “Disability Is Normal” means for you.

No photos or videos of disabled people that are not you, please, unless it is a group shot that includes you and you are also disabled.

If you know a disabled person who wants their experience to be shared as part of this project please have them submit. If they are not physically able to submit, then please message me with a copy of their explicit consent - this would be either in physical signed form (a photo of a signed note), a video of them consenting, or a voice recording. A simple YES answer to a ‘do you want this to be shared on Disability is Normal’ - a physical nod, or thumbs up etc. is good enough for me if the person is non-verbal.

I want to try and be inclusive as is absolutely possible, but this is a place for us to be represented exactly how we want to be. These are our voices!

This is a project for all disabilities, all genders, all ethnicities, all skills, all lifestyles, all perspectives, all social classes and all disabled experiences. We are numerous, we are everywhere and we WILL be acknowledged <3

Please reblog, follow, boost and tag with your disabilities! Let’s get this off the ground - we can only do this together!

If you’re not disabled, please also consider boosting and following! Posts are queued at no more than 4 per day, will be absolutely personable, real, enlightening and interesting. Some posts may even hit your aesthetic tastes or personal interests! (;

I got dressed up with the intention of taking some awesome hospital glam photos in my GP’s office to

I got dressed up with the intention of taking some awesome hospital glam photos in my GP’s office today, but… Sometimes, it’s just not going to happen.

I had to try on about 10+ different pieces of clothing before I could find an outfit that wasn’t just falling off me thanks to the 25lbs I’ve lost in the past 6 months. Getting dressed and undressed over and over with joints that don’t stay in their sockets, and low blood pressure…

You maybe can’t imagine how that leaves me feeling, but let’s just say it’s not glam. And that’s completely okay. A big lesson that has featured in my life these past few years is learning how to have flexible expectations of myself. How to let go of an idea that may not be possible given my physical limitations in that moment.

I’m still learning. It’s all about experience points and leveling up. There is no level cap in these lessons, just like anyone’s life, sick, disabled, or not.


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