Eli have been diagnosed with Acute Myeloid Leukemia (AML) it’s a cancer of the bone marrow and blood and is one of the most aggressive forms of childhood cancer. We have been doing all we could financially to see our son out of this but the year haven’t been so good to us(with the whole covid-19 and lockdown thing). Many family members came through and supported(which we do not take for granted). But in last few weeks the support and help reduced drastically ( which is understandably due to the festive season plus the second phase if covid-19). This is why we seek the public help (financially) to help us fight this together with Eli. Please help donate if you can. Thank you.
Happy new year to you all and thank you for moving us this far (closer to your goal) with the donations and reblogs.
January 3 2021
$1,635 / $10,000
Update; Eli is still running a fever,he’s on his 4 antibiotics, God pls make this one be the right one..but Eli did reach a milestone today… there’s his first tooth sticking out.
PS; sorry I don’t give daily updates as often as i should and haven’t been chanced to thank y'all enough. Sometimes Eli won’t sleep until she’s in my hands. “mommy’s duty” takes much of my time than you can imagine.
I’m using this opportunity again to appreciate all the donations and reblogs. Thank you
Its one month already I last updated
And as at today 03.Feb.2021
Y'all have helped me raise $2,235 of $10,000 and I can’t thank you enough. Eli is doing much more better now but we are still at the hospital for the final stage (I hope and pray).
#Everyyear my #framily @leoluce911 @vickig210 and Mama Luce celebrate #ChristmasinJanuary and it is the best because it’s past the hustle and bustle of the holidays but filled with the true #spiritofChristmas! It is crazy I fell asleep only to wake up 20 minutes ago coughing for 20 minutes straight and I have a fever of 101. The fever is literally because I sat in my #Wheelchair and visited with my friends for the day into the evening. I can’t wait until I feel really good, to do things because I never know when that’s going to be and even if I do feel good for the day, if I exert myself at all, I get a fever the next day that’s just part of #leukemia. That’s why, sometimes you just have to choose to push yourself because it’s better to make the #memories and feel bad the next day then to not have the memories and possibly feel bad anyway, no matter what rest of tonight or tomorrow or the next day holds nothing can take away the magic and memories that was shared January 16, 2019! I feel the same way about actual Christmas 2018. Yes, I ended up in the #hospital yes I ended up in #ICU but I don’t care because #Christmas2018 was one of the best Christmases I ever experienced and nothing can take that away not #cancer not #cerebralpalsy not #pneumonia! #nevergiveup #cancerwarrior #spiritualjourney #psychicinyourpocket https://www.instagram.com/p/BsumV27hlu5/?utm_source=ig_tumblr_share&igshid=jq301itjvewy
I apologize for the lack of art. The passing of my dad has been very rough.
I’m very honored to say that my oldest sister had asked me for a tattoo design in memory of our dad. Last night, 2/05/2022, she had finally gotten the tattoo on her right calf. The three dates are his birth date, his ‘rebirth’ date(bone marrow transplant), and his day of death.
Please do not repost or use this design. The only person that has permission to do either is my oldest sister, who does nothave a Tumblr. Please notify me if someone has reposted this!
In memory of my dad who passed away from Acute Myeloid Leukemia and Sepsis
Please consider either donating money or registering to become a donor at bethematch.org
I was only able to give my dad one more year of life. He received my bone marrow on October 29, 2020 and passed on November 9, 2021. I plan on registering to become a donor to help save others. I feel as though that is my purpose.
My dad was diagnosed with Leukemia(AML) early 2020. He got a bone marrow transplant from me. A couple of months ago, we noticed his cells were coming back, so he started on chemo pills again. We had planned on me donating stem cells, but last week (November 7), he was moved to another hospital to help treat an infection. He had c diff, which probably came from him taking antibiotics. He then developed sepsis on November 7. My two older sisters and I went an visited him on November 8th and one last time today, November 9th before we left. He passed sometime a little before 8PM.
I miss you so much already, dad. It was so incredibly difficult to see you in such a horrible state. I love you so so much. I’m glad you are no longer in pain.
Sorry for the lack of activity! Explanation under the cut
I’ve been having problems with severe lag on MagmaStudio and have been trying to get it fixed.
But more importantly, my dad is back in the hospital. I don’t know if I’ve said this before, but early 2020 my dad was diagnosed with Leukemia(AML, Acute Myeloid Leukemia). He was in the clear after I donated my bone marrow to him in late October. I originally was supposed to donate in either July or August 2020, but all 3 of us got Covid(Mom, dad and I) the week of the donation and had to wait until we all came back negative(My dad had literally just started having his entire immune system completely wiped out when we got it. We were so careful too). Luckily we all did fine. It was basically like a bad flu for us. We had a low grade temp, exhaustion, and slight coughing.
After almost a year, his white blood cell count has been slowly going down and he’s been taken to the cancer center. We’re currently waiting for the bone marrow biopsy to see if my cells are compromised and whether or not we can continue with the plan of me donating again. This would all be so much easier if we didn’t live 6 hours away from the goddamn cancer clinic…
It’s cruel that this is all happening not even a year after he received my bone marrow.
I am raising awareness about hematological malignancies this month.
Today, it’s all about acute myelogenous leukemia. It’s when your white cells divide endlessly. They aren’t functional which makes you suspectible to infections. These cells also take up space in the bone marrow, causing your red blood cell counts and platelet counts to go down. This makes you tired and very prone to bleeding.
To everyone fighting leukemias, cancer isn’t cute. But you are. Don’t give up!
Eli have been diagnosed with Acute Myeloid Leukemia (AML) it’s a cancer of the bone marrow and blood and is one of the most aggressive forms of childhood cancer. We have been doing all we could financially to see our son out of this but the year haven’t been so good to us(with the whole covid-19 and lockdown thing). Many family members came through and supported(which we do not take for granted). But in last few weeks the support and help reduced drastically ( which is understandably due to the festive season plus the second phase if covid-19). This is why we seek the public help (financially) to help us fight this together with Eli. Please help donate if you can. Thank you.
Eli has been taking all treatments and care from home since I last gave an update(the appreciation update).
Yesterday was a day of mixed emotions.
We were told that Eli’s disease count was down from over 90% pre treatment to now being between 9-12%.
We were also told that this 9-12% was disease cells that had become resistant to the chemo drugs we was receiving last round.
This being said it is important to hit these remaining cells with different, stronger chemo drugs ASAP. He was promptly in theatre last night for his intrathecal dose and commence round 2 later this afternoon.
And yeah, Eli is now old enough to have a transplant!!
This means Eli won’t get any time at home between now and transplant, which will be in 8 weeks with all things going to plan.
We need your donations, prayers, and support again through this last 8 weeks.
How was your turkey day? I took off two days from posting, writing, working, editing…and it was glorious! ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ Thanksgiving is a bit of an emotional time for me; I can still remember the many years of being able to get together with my small family, when everyone was still alive and my parents weren’t sick. I remember years of joy that changed over time, going from home cooked meals at a large folding table, to delicious dinners at the fanciest buffet I’ve ever been to…years of John and I having two Thanksgiving meals in the same day that eventually evolved into my parents actually taking the drive to his parents’ house…those were my favorite years. ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ They’re nothing but memories now… ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ But I’m adding more memories to my mind by being totally present when I’m with the people I love. I’m cherishing every moment we do have together because we will never know when it will be the last time we’re all together. It may seem morbid, but my parents’ illnesses have shown me how quickly things can change, and how important it is to appreciate the little things in life. How important it is to be present in the moment. Because life can change in an instant. ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ #thanksgiving #turkeyday #fallfashion2018 #fallfashion #fallvibes #family #showlove #andigetdressed #whatfatgirlsactuallywear #visiblyplussize #sosoncy #plussizefashion #plussize #celebratemysize #honormycurves #thanksgiving2018 #relationshipquotes #memories #pumpkin #pumpkins #parkinsonsdisease #parkinsonsawareness #leukemia #cancer #fuckcancer
I heard from a colleague tonight who was in tears, because a patient she has had for the past 4 years is going to die of leukemia, since his only available marrow donor is his brother, who has a Syrian passport and therefore can’t enter the U.S. under the Republican travel ban, even for just the few days. Politics matter, people.
