#tom boy

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Today, trying on clothes for an upcoming wedding. Think I’m 75% of the way there. Now, tie or

Today, trying on clothes for an upcoming wedding. Think I’m 75% of the way there. Now, tie or no tie? Worry is: a tie would make me look like some kind of waiting staff.

Also, my dislocated wrist that I’m sure only other EDSers have noticed!

{please don’t remove my caption}


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It’s been a year since the surgery to place this feeding tube. To the day. Originally there were pro

It’s been a year since the surgery to place this feeding tube. To the day. Originally there were promises of it alleviating symptoms but it quickly became clear, that in reality, this thing is just saving my life.

I’ve had no end of troubles with it since the very day it went in. Many of my problems with it have been atypical or rare; my experienced GI team having never even heard of them. Too numerous to list, and too complicated to explain with words alone.

At first this tube frustrated me so much it triggered some of the worst meltdowns of my life. Then there was the depression because of the lingering pain that should have disappeared when it healed. The anxiety of how this thing made my body look and how uncomfortable it was. Now it’s just there. It still causes pain, it still gets in the way. I still catch people staring. My body is still not a ‘normal’ one but then it never has been, so what is a tube and what is a stoma to such reality?

The things I live with every day with this thing 99% of people couldn’t comprehend. But now, it’s just me. A year isn’t a very long time in a life time and a year is even less time in the great big picture that is humanity. Still, in such a short time, it became part of me. 40 years ago I would have died from starvation. Now I can not only survive, I don’t even have to do it in a hospital.

At first, having a tube coming from a hole in my actual organs seemed barbaric (as does much of modern medicine). ‘Surely, we are more advanced than this?’, I thought. But, no, no we are not. Medicine is barbaric; it may always be that way. 40 years ago I would have died from starvation and now this is mynormal.

{please don’t remove my words}


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Teenage girls are magic

I’m tired of everyone saying otherwise. What’s wrong with being a teenage girl? Why is it if a teenage girl is onto it, it’s hated? Have you ever met a teenage girl?

They have deep thoughts. They’re full of passion and dreams. They push past anxiety, beauty standards, and let’s face it, teenage boys. All the while processing their transition to adulthood.

Shout out to moody girls and their blunt honesty.

Shout out to soft girls and their kind words.

Shout out to competitive girls–kick all their asses show em what you got.

Shout out to funny girls and the joy and courage they spread.

Shout out to nerdy girls. Yall work so hard and it’ll pay off.

Shout out to tom boys and girly girls. You do your thing in spite of those who think less of you.

Shout out to girls who like pumpkin spice lattes. Your choice in beverage should never be an insult to your age or gender.

Why do people hate teenage girls? As if that’s all they could be.

From the shoot yesterday… Fun, but FUCKING COLD!!!

From the shoot yesterday… Fun, but FUCKING COLD!!!


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