#mast cell activation disorder

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disabilityisnormal:

Please submit photos, videos, illustrations, visual posts that show your real life, every day experience of the world as a disabled person. Whatever that may be! It can be anything from mundane every day things, your fashion, your selfies, your food habits, the things you enjoy doing, to the adventures you go on, basically anything anyone would ever share about themselves. It doesn’t have to be a 100% positive experience, though, as that is not real life. Any emotion, any experience. I’m interested in presenting what it is like for disabled people to live their lives.

Photos, videos etc. should probably include you, a part of you, or your actual Point of View to be a true depiction of you and your experience. They should also be clear, the subject matter should be recognizable, and relatively interesting to look at (if not downright hilarious commentary on the mundaneness of living life as a human being). If we want this project to make a difference it should be something that all kinds of people want to look at.Let’s burst out of our echo-chamber and refuse to be ignored!

Whatever else, you should be presenting yourself and your experience how YOU want to be presented. This is about both education and empowerment. I’m not here to dictate how you depict your life and what “Disability Is Normal” means for you.

No photos or videos of disabled people that are not you, please, unless it is a group shot that includes you and you are also disabled.

If you know a disabled person who wants their experience to be shared as part of this project please have them submit. If they are not physically able to submit, then please message me with a copy of their explicit consent - this would be either in physical signed form (a photo of a signed note), a video of them consenting, or a voice recording. A simple YES answer to a ‘do you want this to be shared on Disability is Normal’ - a physical nod, or thumbs up etc. is good enough for me if the person is non-verbal.

I want to try and be inclusive as is absolutely possible, but this is a place for us to be represented exactly how we want to be. These are our voices!

This is a project for all disabilities, all genders, all ethnicities, all skills, all lifestyles, all perspectives, all social classes and all disabled experiences. We are numerous, we are everywhere and we WILL be acknowledged <3

Please reblog, follow, boost and tag with your disabilities! Let’s get this off the ground - we can only do this together!

If you’re not disabled, please also consider boosting and following! Posts are queued at no more than 4 per day, will be absolutely personable, real, enlightening and interesting. Some posts may even hit your aesthetic tastes or personal interests! (;

Was about to go to the er this morning because I was having a hard time breathing and “staying awake” and I decided to take half a benadryl while I was getting ready… shortly after taking it

We feel like we have to project this image of disabled and chronically ill people being so brave. Like they’re such heroes because of everything they go through without complaining. And it’s true that we’re cool, but sometimes I’m sick of it. Sometimes I don’t want to be seen as someone brave or tough, even by myself. I cried for hours today because the pain just got so bad, and afterwards I found myself apologising to my family. Screw that. Why was that my first reaction? I want it to be okay for me to have days when I’ve had enough of it, to just cry and be sad and angry and frustrated because it’s not bloody fair. To not constantly worry that I’m a burden to everyone around me. Sure, I like making people smile, I think it’s good to be sunshine when you can’t find any, but I’m sick of insisting it’s not raining. I like to inspire people and do good where I can, but I am not your inspiration. That’s not my sole purpose. I didn’t choose this. I don’t owe it to anyone to turn this into some kind of origin story. Some days I just need to frickin survive and know it’s ok to not be ok and cry without apologising for it and be mad without feeling guilty because this is not my fault

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