literalfuckingdragon:

haikyuupaladin:

Ok, quick rule of thumb to tagging posts for the safety of photosensitive epileptics.

Does you post contain flashing lights, heavy glitching, or anything else that is likely to cause a seizure from looking at it?

Tag it with flashing lights

Does your post warn about one of the above in a movie or video or tv show or game without including visual examples that would make the post fall into the above category?

Tag it with epilepsy

In summary: is it important for us to see it? Tag it with epilepsy. Is it important that we DONT see it? Tag it with flashing lights.

Basically, the epilepsy tag is for information related to epilepsy, the lights/flashing tag(s) are for warning those with epilepsy!

Epilepsy is hard. Some of you maybe newly diagnosed, others might be long term Epilepsy Warriors. Either way, Epilepsy sucks. It comes with dark days and bright days. And some days, the ones plagued with seizures and side effects and comorbidities, it probably seems like it will never get better.

But I was diagnosed with drug resistant Epilepsy at 4 ½. I’ve had regular seizures for nearly 25 years, and every day I deal with the migraines, processing issues, memory loss and stigma that comes with it. But I have also earned a Bachelor’s degree, a minor degree, a brown belt in Japanese JiuJitsu, and I’ve traveled by myself multiple times as well as living myself.

Nothing is impossible. You can accomplish anything. It might be harder, and it might take some out of the box thinking, but it can be done. Just stay positive.

Happy Purple Day!!!

anotherdayforchaosfay:

Fellow epileptics, I have some fantastic news for you. There’s an add-on that makes the internet safer for us. It’s called Epilepsy Blocker. The creator had me test it out, give feedback, he made adjustments, and it works great. It may even help those with migraine disorders that are triggered by the same thing that messes with those of use with photosensitive epilepsy (mine is a case of being absurdly sensitive).

This is the only add-on I’ve encountered made specifically for those of us with epilepsy. It’s not a well known add-on, but I hope to see that change.

I’d also like to state its for Mozilla Firerox.

the-epileptic-toh-blog:

Decided to sorta visualize my feelings on my zonisamide situation. In July I’ll be 4 years seizure-free. I really REALLY dont want a breakthrough ruining my record.

I feel this. Except I could never dream of being 4 yrs seizure free. I’d be lucky if I make it to 6 months seizure free.

brain-buddies:

brain-buddies:

Maybe I wouldn’t be broke then

How many of you have spent time in the EMU???

Appointment Survival list.

brain-buddies:

brain-buddies:

brain-buddies:

brain-buddies:

You know you’ve had Epilepsy too long when you nearly fall off the couch from laughing after reading this.

What’s worse is when your parents do the same thing.

This is so fucking funny. I showed it to my mom and we were laughing so hard.

brain-buddies:

What I can Tell And What I Can’t Tell You

I can’t tell you how many sicknesses exist in this world…

I can’t tell you how many times you’ve been chained up and raped…

I can’t tell you how many times you failed to escape from this place…

I can’t tell you how many guards there are…

I can’t tell you how long they have been holding you hostage…

I can’t tell you if they’re going to free you…

If they are, I can’t tell you when…

I can’t tell you who I am…

Because those are the rules.

But what I can tell you…

Is that I will always be there for you.

Instagram: mister_kitty_freedom

Shrunken Eiffel Tower

We were childhood friends.

We went everywhere together.

You said you had to move one day.

You didn’t tell me where.

Why? It wasn’t because you were trying to be a jerk…

You just didn’t know.

“All I know is that there is this big tower in the town” And then you showed me a picture.

It was the Eiffel Tower.

We didn’t know what it was at the time.

After all, we were in 1st grade.

We were young.

When you moved, we stop talking.

Then I got Epilepsy.

But I didn’t let it stop me.

Everyone excluded because of it.

So I decided not to tell you.

I didn’t want to lose my only friend.

You moved.

I was bullied even more.

Later on, I went into college.

I studied fashion in Paris.

When I moved into my dorm…

You were my roommate.

You were married and had made her pregnant.

Announcement: Next week I’ll be on a trip without my stories. So there will be no story this upcoming weekend

“My life is like a…a…labyrinth!” I shouldn’t have said that…

Every time I try to hang out with my friends, they don’t have time.

Every time I want to buy something, I either don’t have the time or money.

I fail at everything I do.

I’m lost in the labyrinth.

A dead end.

I constantly find dead ends.

“Where’s the exit?!” I ask myself.

I need to leave.

I’m hungry.

There’s no food here.

I’m sleepy.

There are monsters everywhere.

“I can’t sleep with all these monsters” I thought.

Then I remembered…

Why did the king put me in this labyrinth.

Because I tried to give his daughter epilepsy with my magic.

There’s no escape from the labyrinth.

That is why it is so famous.

I’m gonna die here.

I may have wings…

But without my energy…

I can’t fly.

There’s also a spell that won’t let me leave.

They are probably going to erase my memories again anyways.

Instagram: mister_kitty_freedom

Dear Readers,

I wanna sit down with you.

In the middle of 2018.

As you know, I have epilepsy.

I had an orchestra concert (For school), the last one of the school year to be specific.

The president of the orchestra student council (As I like to call it) moved.

So my friend was picked to do the speech instead.

During my friend’s speech…

It’s the last thing I remember.

Then the next second…

When I blinked…

When I opened my eyes again…

The audience weren’t in their seats.

I wasn’t sitting down with my cello listening to my friend’s speech.

I was laying on the floor…

With paramedics and my parents around me instead.

They took me home in the ambulance.

I remained a scar in my heart.

Why?

I had epilepsy…

No doubt, I knew that.

My friends knew that.

My family knew that.

The church I went to knew that.

After all, I said it on a microphone at church.

But…

Now a bunch of strangers know that too.

At church, I wanted them too…

But I didn’t want the entire school to know…

Now they treat me differently…

They stare…

They treat me nicer than other people…

I feel like a fucking a sick, depressed, excluded, alien.

Is there something wrong with being epileptic?

Yes, it’s horrible to have.

But I’m still a person.

I still feel.

I still have questions.

Will I ever be able to play again? Everything reminds me of the concert.

I’m too traumatized. Am I even traumatized?

Why has almost everybody changed?

Why didn’t somebody just turn on the A.C.?

How long was the seizure?

How many people helped?

How many people faked their smiles after I regained consciousness?

How many instruments were damaged?

Why wasn’t I told I may have a seizure in the heat?

How many people didn’t care?

How many people knew about epilepsy?

How many people did not know?

How many people believed in the stereotypes of epilepsy?

I know my questions will never be answered.

But I want the world to know from my point of view.

There’s one question only the future can answer…

Will I ever be able to touch and/or play my cello again?

Judged

We broke up.

You called me weird.

Remember how I told you I was child abused?

I was in first and second grade.

It was for two years.

I was being bullied at school.

The entire family tried to take advantage of me.

And don’t forget I was being judged by the entire town.

All I had was my great-grandma.

Unfortunaly, on April 3rd during second grade, she passed away.

I became suicidal.

Since I lived down in an apartment, I wanted to go on top of the building, and jump.

But I didn’t.

Something stopped me.

I don’t know what it is.

What is it?

I wasn’t even in the United States.

I was in Mexico.

I wasn’t fluent in Spanish.

I didn’t know where I was.

I had no hope.

Why?

I would have had a little hope if I knew who God was.

Did you know all of that?

Well did you?!

No, you didn’t.

Because you didn’t let me finish my story.

I am a storyteller.

When you tell your friends I’m weird,you bring all these memories back!

When you call me weird, you bring all these bad memories back.

Next time you judge someone think about when you judged me.

You can’t make it up to me.

If you judged me you judged me.

I will never forgive you.

I will always remember that you judged me.

But if something bad happens to you…

Just remember…

Don’t mess with this

Storyteller’s stories.