To the people who couldn’t get out of their bed today, I’m here for you…
To the people who skipped showering because they didn’t have the energy, I’m here for you…
To the people who cried in agony through their shower, I’m here for you…
To the people who suffer daily but no one believes them, I’m here for you…
To the people who feel like they’ve lost or are losing their youth to their medical issues, I’m here for you…
To the brave people fighting for their health every day, I’m here for you, I support you, I believe you. Your feelings are valid, you are loved, and I will stand behind you.
Just had the funniest appointment with my neurologist: I’m starting self injections for my migraines (scary) AND apparently they missed mild tethered cord syndrome on my scans for years omg, so I’m finally diagnosed with that
Chronic illness and fatigue make for a winning combo, if by winning you mean it taking all your energy to roll into a more comfortable position so you decide to stay in an uncomfortable spot because you just don’t have enough energy to readjust.
See also: chronic fatigue is like if you turned a weighted blanket into a onesie and had to wear it all the time.
Just last week, the FDA approved the first drug designed to prevent migraines! It’s been all people are talking about in the headache/migraine community, because it’s a pretty big deal!
Living with migraines is tougher than most people can imagine. What can be even tougher, is finding the right doctor, the right treatment and finding both without going broke.
ARG. My joints hurt SO BAD today, and I don’t know why. I’ve been eating low histamine. I have gotten lots of sleep. I haven’t been overly active. My work stress is way down.
The only two things I can figure are that I’m on my period and there’s a low pressure weather system coming in. Neither of which I can stop. But I really hope the pain goes away soon… it’s been so nice to feel relatively able-bodied!
I had a much better pain day today! I think it was the low pressure system.
My right ankle is still bad, but I’m pretty sure I have Achilles tendonitis in that ankle so… yeah. Bracing it during the day and R.I.C.E. at night
I actually found some research the other day stating that the time around periods is when the estrogen in your body is lowest and due to estrogen being a hormone that among other things increases pain tolerance, your pain sensitivity is heightened. As a result, in patients with arthritis, fibromyalgia and other chronic pain conditions who have periods it has been noted that during their period is often when the pain is worst.
Or it was the low pressure system. Hope you’re feeling a bit better!
As much as i realize it is unreasonable to think that tests wont show anything if my symptoms arent showing, it’s very frustrating that my hands are numb TODAY and not YESTERDAY when i had the EMG.
I genuinely enjoy going to a new dentist and seeing the horrified and dismayed look on their faces when they discover im missing 5 teeth cause GENETICS.
Me, yelling at the robot vacuum: god damn it! who made you, why are you so freakishly strong? What the fuck!
Oppy, turning the corner having ripped the fucking wall vent off the wall in the dining room and merrily trundling on her way:
A criminal.
whaaaaaat? oppy is shredded! Our Dop wouldn’t be able to do that afaik and he’s same brand
I maintain there is something wrong with her because it genuinely seems too powerful for something designed to vacuum a floor. Nothing it safe, the other day she pushed the armchair out of the corner and in front of the TV. It’s like living with a mechanical poltergeist.
My WallE (same type as Oppy) constantly just knocks things out of the way. Benches? Check. Boxes? Check. Dogs? Check.
“Why should I go out of my way to make things accessible for disabled people, i never see them anyway.” There are way more disabled people than you think. Do you know why you dont see them very often? Because alot of disabilities are invisible, and the ones that aren’t. The people who use mobility aids, you dont see them very often because you aren’t making things accessible.
How hard is it to add a ramp? How hard is it to have a few tables at your restaurant that are made for wheelchairs to fit under? I’ve literally seen charities that raise awareness for accessibility that aren’t accessible. Build ramps, add items onto menus that accommodate allergies, make sure (if its needed) there is a lift that is working.
Over summer, a “friend” got mad at me because I was unable to go out then proceeded to say I have too many medical issues and she didn’t want to deal with them. We don’t talk any more.
Yesterday, my best friend who has a cold texted me saying “I hate being sick.” Her message didn’t bother me at all because my illness doesn’t take away from what others feel, yet today she apologized for saying something that may have felt insensitive.
sometimes the sky is HEAVY and sometimes the sky is LESS HEAVY, you wake up every godforsaken day not knowing HOW HEAVY THE SKY WILL BE because that dumb blue bitch is a fluctuating MERCURIAL HARLOT and I am SICK OF IT
the notes are a 3-way-handshake between people with pressure-related joint pain, people with pressure-related migraines, and autistic folks with pressure-related Everything Feels Like Shit Today For No Apparent Reason. you’re all valid fuck the sky
hold the fuck up.
okay which irrelevant-looking weather number should I have been paying attention to all along and how far apart are the “too high” and “too low” versions of the number?
I have no clue what numbers indicate this, nor how to read them, but I do always know when either a Clipper or Chinook is coming through the next day, because my migranes will get 5000x worse and my injured knee (and as of this year elbow, but I’m hoping that goes away or at least minimizes as it heals) will swell up like a pain balloon. I can tell the difference purely by the fact that Clippers are worse and also make my ankle act up too. Like there’s always jokes about how old people can feel the weather changing, but that is 100% true and not restricted by age, and the only reason old people are more likely to know this is because they’ve had longer to both aquire and learn to read this kind of ailment.
Hey everyone! I was just wondering if any of you had any advice for dealing with heat intolerance. I have a roadtrip to Yellowstone coming up and get really really sick in the hot and I get motion sickness and we’ll be in the car for hours at a time for days at a time I an environment that is much hotter than where I live. I’m kind of scared that I’m going to spend the entire time feeling nauseated
So I struggle with this a lot too and I’d love to hear how some other deal with it!
Personally I wear as little clothing as I can but I also use a metal hollow tube that I fill with ice or some other cold substance and then place between my breasts. It sounds and looks weird but it has saved me so many times. It cools my core super super fast. A wet bandanna also does wonders especially because to reset the cold, you just need to whip it around a little.
The price put on education is dumb as hell and I for one won’t let anyone else be scammed by their university bookstore!
If you message me your textbook ISBNs I can find you scans of your textbooks for 10 dollars a pop. AND I can offer you these textbooks without you giving up any information about yourself, because let’s be real the internet is a sketchy place. I can just send you a link to a google drive where you can access the PDFs and downloaded them without any fear of malware or viruses.
I just want to save y’all money. Personally, all my spending money goes towards my cat and food. I saved myself about 600 dollars. I want to do the same for y’all. Please feel free to share this around to anyone you know struggling to buy textbooks.
This isn’t a scam, this isn’t a hack of my account. To prove it, here is a picture of Tippy being adorable. TBH the internet can never have too much cat pictures
We feel like we have to project this image of disabled and chronically ill people being so brave. Like they’re such heroes because of everything they go through without complaining. And it’s true that we’re cool, but sometimes I’m sick of it. Sometimes I don’t want to be seen as someone brave or tough, even by myself. I cried for hours today because the pain just got so bad, and afterwards I found myself apologising to my family. Screw that. Why was that my first reaction? I want it to be okay for me to have days when I’ve had enough of it, to just cry and be sad and angry and frustrated because it’s not bloody fair. To not constantly worry that I’m a burden to everyone around me. Sure, I like making people smile, I think it’s good to be sunshine when you can’t find any, but I’m sick of insisting it’s not raining. I like to inspire people and do good where I can, but I am not your inspiration. That’s not my sole purpose. I didn’t choose this. I don’t owe it to anyone to turn this into some kind of origin story. Some days I just need to frickin survive and know it’s ok to not be ok and cry without apologising for it and be mad without feeling guilty because this is not my fault
