#chronic fаtiguе ѕуndrоmе

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It’s fitting that we’re called patients, because we need lots of patience to deal with unhelpful doctors and wait years for a diagnosis. 

I recently had a doctor tell me that I should “stop seeing doctors” because a treatment I received has eased some of my symptoms. I didn’t say anything to him at the time, but I wanted to tell him how wrong he was. 

I can’t function nearly as well as I was able to before I got sick. Why should I stop seeking treatment just because I’ve improved some and am no longer totally bedbound or housebound? I don’t think that my doctors would accept such poor health for themselves or their family members, so why should I? 

I think doctors also don’t think about the fact that my health directly influences how much money I earn. I want to have the option of working full time for someone else to increase my paychecks, but I don’t think I’d be able to sustain that kind of employment right now. I can’t support myself on what I currently earn online, and I don’t want to live on a below poverty level income if I don’t have to. 

So, sorry doctors, but as long as I’m on my parent’s health insurance, I’ll be seeking out new treatments. 

does anyone have any tips on hygiene and chronic illness? I dont have enough energy to brush my teeth, shower, brush my hair etc. most of the time and it’s not great. thank you!

howtobeapersonwithfibro:

friendly reminder that being disabled is a full-time job. don’t let anyone make you feel bad for not working when you are physically incapable. you work harder than anyone else just to keep up with your day-to-day life.

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