#type 1 diabetic

LIVE

I got the shot! Fortunately my state counts type one diabetics in the high risk group for vaccine prioritization. To quote my endo on the CDC recommendation that only type 2s get vaccine priority: “COVID doesn’t care WHY you have diabetes! It can’t tell! What matters is that YOU HAVE DIABETES.”

He’s great. A type one, too! But also seriously— as soon as you can get vaccinated, do!

PSA for diabetic brides

If you wear a pump, beware crepe! Very revealing.

You know when you take out a site and it’s immediately itchy and awful? Yup. That’s me, today. 

PS-stay tuned for a review of my new pump, the Medtronic 670g! Sorry for the lack of updates, both me and the fiance are running for office.

How I know my BF understands that T1 life:

We were watching Game of Thrones and one of the lady characters was walking around, doing her thing, when my bf just randomly goes “oh!”


I asked him what was up. He said he’d been trying to figure out for the last five minutes where she keeps her insulin pump in that outfit.


BOY FORGOT THAT NOT ALL LADIES HAVE TO WEAR INSULIN PUMPS

When you wake up, test, realize you’re high AF, treat, and nap until you’re normal again.

If only I could do it on work days…

Copyright me, your internet diabetic dictionary :P 

Sorry I haven’t posted in so long, guys. I’ve been focusing my efforts on political action and haven’t had a lot of time to write! Anyway, I wanted to share this comment I wrote, which was picked as a top choice by the New York Times in response to the AHCA vote today:

I pay federal income taxes just like you. However, I am also sick. As a child I was diagnosed with type 1 diabetes, an autoimmune condition which renders me unable to produce the hormone insulin. Thus, I rely on injections and daily blood testing to keep myself alive. Without insurance, I need to pay over $20,000 per year to survive. I have no other choice. Without insulin, I die. That’s an unreasonable economic burden for a 24-year-old–frankly, for anyone.

The fact is, there is nothing I could have done to stop myself getting sick, just like those with cancer or many other illnesses. I was simply healthy, then I wasn’t. The healthcare market is not a free market because we, the sick, are held captive to our bodies and the medical costs that price us out of living.

A more economic example: I cover my home in case of fire, and I hope I never have to call up the insurance company. Yet, I still pay in to the system to protect my property. Hopefully, I will never have to use that money, and it will be used to pay off some other person’s insured and destroyed home instead. With healthcare, why is it any different? We pay in, hoping never to have to use the benefits, while the money goes to another. You, like me, could wake up one day and find yourself stuck with a pre-existing condition. This is why we have insurance and need the protections of the ACA.

Guys, I am sick and tired of being sick and tired. Fight back.

Our health should not be part of a free market exchange. Saving money is not equivalent to saving lives.

While you can decide to keep your house a bit cooler to lower your electric bill, you can’t have a little less chemo to save a few thousand dollars. There’s no “hey, maybe just forget the insulin so you can save for a few months of retirement money, skimp on the blood thinners or dialysis and get some pocket change for the movies.”

Healthcare is a non-negotiable part of life. So why do we rely on a system which ebbs and flows based on the number of healthy people who choose to sign up and create a market based on humans as commodities; the federal laws (looking at you, abortion ban HR-7) that cause insurance companies to choose their own financial safety over the people who need medical safety?

Don’t let this government turn us and those less fortunate than those I know reading my inordinately long post into market objects for financial gain. Call, dissent.

As always, continue to support the ACA by calling your reps or Sen. Paul Ryan–(202) 225-3031

Oppose HR7 (which bans all federal funding for abortion services, targeting the underprivileged on Medicaid as well as effectively eliminating ability to get coverage for abortion even if paying your own funds through any ACA/gov program) by calling your reps.

…woke up with a peanut in my bed. Guess I missed my mouth mid 3am blood sugar drop.

Whoops.

Time to push more of my liberal agenda: protect the ACA. Call your lawmakers! Think of how much diabetes costs without insurance–tens of thousands of dollars. Without preexisting condition protection, we don’t get insurance. Without bans against lifetime insurance caps, we don’t get to keep insurance. 

We may be sick, but we are not dead; don’t let your house representatives categorize you otherwise. We deserve to live full lives, regardless of a disease we did nothing to earn and cannot will away. 

So fight. Be sick–there’s nothing we can do about that–but nevertire. 

You can search your representative numbers here:

http://www.house.gov/representatives/find/

Why does this keep happening??? I use angled sets to avoid kinking!I guess it must be all my super

Why does this keep happening??? I use angled sets to avoid kinking!

I guess it must be all my superior muscle mass and adamantium skeleton getting in the way…


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Finished this year’s diabetes walk with my family! My sister and I are showing off our pump sh

Finished this year’s diabetes walk with my family! My sister and I are showing off our pump shirts today with my “inspiration” in hand. Together we raised over $15,000 this year for JDRF between the walk and my dad’s bike ride!


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Hi, all–sorry I’ve been so long. 

So, do I have news for you! I officially have chronic condition #2, thought to be autoimmune. Now, in addition to attacking my pancreas, my immune system has decided to revolt against my skin. At least I’m special; less than 1% of the population apparently has this condition. Thing is, while rare toys, cards, books, or collectibles may be great, rare diseases are far less so. 

What surprises me is how much more of a toll this diagnosis was taking on my self esteem than has diabetes this past week. For better or for worse, diabetes is an invisible illness. It has far more of an impact on my life than skin changes, but I can hide my pancreas problems if I so choose (though I usually don’t). You can’t hide a skin condition, and it doesn’t make you feel pretty. It makes you feel strange, and it seems harder to reclaim as a positive in the way that I own my “cyborg parts” as a part of my diabetic identity. 

The good news is, with the diagnosis and proper treatment, I’m getting better. 

I like to imagine that my immune system is just so incredibly strong, though it may attack my body, it’s also some sort of superpower–maybe I’d be immune to a zombie contagion or nuclear fallout. Silver linings? 

Come on, guys! A month left to donate. These buttons are limited in quantity, and all you have to do is donate to help find a cure for type 1 diabetes! It’s a win-win! Just include your mailing address when donating:

http://www2.jdrf.org/site/TR?fr_id=6292&pg=personal&px=10474618

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