#chronic insomnia

If you yell at me, be sure I’ll start crying and the situation will be more uncomfortable for you than for me.

I love the sound of silent people.

I never catch a cold, I immediately catch my death.

Why do I only get the will and the self-confidence to change my life in the middle of the night?

To tell you the truth, I’ve never forgotten my homework. I just considered sleep as a higher priority.

This world was made for healthy people.

It’s not always going to be accessible, it’s not going to always have what you need. But you know what you need.

You have to make the world accessible to you.

No one is going to do it for you because this isn’t a chronically ill world, it’s a healthy one. And the best advocates for your needs is you.

Go make this world your world, and advocate for you.

SPOONIE THINGS NO ONE TALKS ABOUT PART 21

Pain procrastination.

Spoonies are master procrastinators, but not because of the typical reasons.

Imagine every single time you took a step, you knew that you would sprain your ankle. Suddenly, you’re more than willing to put off doing that extra load of laundry that needs doing, eh?

That’s how it is with chronic illness. We know that doing simple daily tasks is going to bring unspeakable pain. So we put it off. We try to psych ourselves up for doing things, preparing for the pain, but often it’s putting off the inevitable.