#cysticfibrosis
When your sinuses are so bad that you actually start crying blood. thanks to my trashed #sinuses and an encore with my #cysticfibrosis to land me in the ER, TWICE in the same day. (Was literally probably only gone for maybe thirty minutes?) (at Yavapai Regional Hospital Emergency)
https://www.instagram.com/p/B5uAI5llKoHALQ8Ccyna2iZ387SyiNTR-3E6BA0/?igshid=1436o145ydvkm
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@thefreylife Thank you, Mary, for all of your positive and supportive words. You are a beacon of light in the fog that is #cysticfibrosis
https://www.instagram.com/p/B5MM0laF2OBkfnN42_mmE5C0xTvQkg_6-3klFk0/?igshid=1j3w6bdl6ib83
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Whether you’re moving into your first apartment, getting started in a new dorm, or living it up at your parents’ place, furnishing your living space should be all about you. Here are some things you can get to make your home more CF friendly.
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From your doctor to your nutritionist, friends to family, you have a squad that will always have your back.
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when i’m feeling sick the hospital is actually a nice place to be. i don’t have to worry about any of my meds and i get to just nap and watch tv and do online puzzles and just let my body get better. sometimes it’s overwhelming and sometimes i feel lonely but as i get older i understand that sometimes it’s the best place for me to be.
Finding strength in trying times can be tough. But finding the right time to fart during a date can be tougher. Stay strong, CFers. Stay strong.
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Most people don’t realize the struggle, but that’s OK. Sometimes all they need to hear is that your stomach is acting up and they’ll understand without prying any deeper.
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No offense to anyone, but sometimes you just don’t want to go out. We get it. If these excuses don’t work, here’s a foolproof fallback solution: “I have a club meeting and the first rule says I can’t talk about it.”
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Don’t try to pass the blame on your passed gas. Cutting the cheese is just another symptom of EPI.
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Accepting your limitations when you have a chronic illness or disability doesn’t mean you’re lazy or pessimistic. It’s more than ok to acknowledge and respect the fact that there are things you just can’t do. Don’t listen to anyone who tries to put you down or make you feel guilty for saying “no” when you aren’t able to do something.
Every year, the AbbVie CF Scholarship Program awards scholarships to CFers. So why not get in on the action? This is your chance to share your passion, drive, and what makes you, you. It could pay off in a big way, literally. You could win $25k to help with those college tuition bills. Click here to apply now
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It stinks when you forget those pesky enzymes at home. You know it. We know it. And some of the people you hang out with might know it too. To avoid being stranded without your PERT, try leaving some in places where you normally go (like at work, school, in your purse, in your SO’s medicine cabinet).
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Avocado is loaded with healthy fat along with nutrients and vitamins. Perfect for getting a ton of calories without being unhealthy.
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The struggle is real when it comes to remembering your enzymes. Coming up with creative ways to bring them with you ensures that, no matter where you are, you can take your enzymes when you eat.
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CF and EPI aren’t an easy pair to go up against. Every good flush is a little win worth celebrating.
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