#narcolepsy
https://archiveofourown.org/works/26748730/chapters/66335668
Prompt: What’s a Whumpee Gotta do to Get Some Sleep Around Here?, Exhaustion, Narcolepsy, Sleep Deprivation
Fandom/OC: Original Work
TW: swearing, starvation, dehydration, cult mention, broken bones, rape mention, blood, gore
Hey my webcomic In The Woods Somewhere updated today - you should check it out!
-> -> -> https://tapas.io/series/In-the-Woods-Somewhere/info
It’s a surreal horror/slice of life story about a boy with narcolepsy… You can also read it here…
-> -> -> https://www.webtoons.com/en/challenge/in-the-woods-somewhere/list?title_no=589173
a lot of people think narcolepsy is just ‘being sleepy’ or even ‘being lazy’ but it’s so much more than that. symptoms of narcolepsy include:
- extremely intense, vivid dreams/nightmares. narcolepsy is defined as a disorder in which most of, if not all of your sleep is REM sleep. this is what causes daytime sleepiness; your body is NOT RESTING CORRECTLY and is physically incapable of doing so. we have little, if any deep sleep.
- sleep paralysis and hallucinations.
- cataplexy, found in type 1 narcoleptics. cataplexy is very similar to a seizure, though it is not classified as one. episodes of cataplexy are usually (but not always) brought on by strong emotions, and cause you to lose control of different parts of your body, ranging from muscle limpness to full on collapse.
- EDS, or excessive daytime sleepiness. often times, narcoleptics will suffer from something called a sleep attack, where they fall asleep uncontrollably. this can happen while working, driving, or doing hobbies.
- increased risk of all cancers and other (yes, narcolepsy is suspected to be an autoimmune disease!) autoimmune diseases, as well as an increased rate of mental health issues. ADHD, diabetes, heart disease, and depression are often co-morbid with narcolepsy. tying in with this, we have an increased rate of suicide.
- insomnia due to the nature of extremely fragmented and disrupted sleep. intense and vivid nightmares can often make WANTING to go to sleep difficult as well. pretty much any other sleep disorder can be co-morbid with narcolepsy.
- decreased cognitive function. memory issues are common in people with narcolepsy; even a mild case of narcolepsy can be compared to going 48-72 hours without sleep in a normal person…except its every day.
- extremely poor quality of life. [1] [2]
- not a symptom, but it often takes narcoleptics several years to be diagnosed w this disability; it is EXTREMELY under-diagnosed, and testing and treatment are very expensive even with insurance.
there is no cure for narcolepsy, only treatments. the only treatments we currently have are various stimulants (adderall, modafinil, ritalin, etc) or just straight up GHB. many people cannot tolerate these medicines, making treatment even more difficult.
(keep in mind that i am writing this post from an american perspective; i know treatment is often more accessible in some ways in other countries, though i also know it can be worse/harder in different ways too.)
I came across this post about a week ago, had an “Oh shit” moment, went to read the Wikipedia article, and had another “Oh shit” moment. I just spoke to my doctor and he says yeah, I might have narcolepsy, and he’s referred me for a sleep study. So. Yeah. I’m 49 and I’ve had these symptoms at least since I was 14, but since I don’t have cataplexy I didn’t take it seriously.
What makes you vulnerable makes you beautiful…there’s a word for it: authentic
Vulnerability is a scary thing. We don’t want to look weak. We don’t want people to pity us or judge us. We know we can’t be perfect, but we don’t want to seem too imperfect.So often, we think our imperfections are our flaws. However, we shouldn’t confuse the two or make them interchangeable. Because our imperfections…
November Intentions: Grace and Gratitude
Hello November!
Setting monthly intentions has quickly become one of my favorite mindfulness practices. It’s a way to set goals for myself and a way to remind myself of the mindset I want to live in. I’ve started placing my intentions on my dresser so that I have to look at them every single day. This way, I’m not just writing the intentions to write them – I’m writing them so that I can…
This weekend I was in Southwest Virginia in a town called Blacksburg, Virginia where I spent four wonderful years going to college at Virginia Tech before graduating in 2015. I have family who currently lives in Blacksburg, family who grew up in Blacksburg and family who also previously attended and some who currently attend Virginia Tech.
Basically, Blacksburg is my second home.
While I was…
When Sleep Disorders Go Unnoticed
An estimated 50 to 70 million Americans chronically suffer from a sleep or circadian-related condition (Project-Sleep). And it turns out I am one of those people. However many sleep disorders go undiagnosed or unnoticed simply because people don’t realize they have them. I was one of those people for so many years of my life. I wasn’t diagnosed with narcolepsy (without cataplexy)until the winter…
2017 WEGO Health Awards–Vote for The Headache Heroine!
I am excited to share (even though I may have already initially shared) that I have been nominated for the WEGO Health Award in the 6th Annual WEGO Health Awards! Last year I was nominated for three categories and a finalist in two. This year, I’ve been nominated for two categories: Best in Show: Instagram and Best in Show: Twitter. WEGO Health is a mission-driven company connecting healthcare…
Also she has Narcolepsy. Good luck distinguishing between the two. <3
Permaculture Lessons, part two: Disabled Permaculture
Permaculture Lessons, part two: Disabled Permaculture
This is a guest post by Laura-Marie River Victor Peace Nopales (see contact info below).
Hello! I made a guest post on Awkward Botany in March, introducing myself and my spouse, and talking a little about my life with permaculture. Permaculture is a way I learn about plants, love the earth, grow delicious foods, and connect with others. Permaculture has a community aspect, and respect for all…
*Starts to raise hand. Only hand falls. Then collapse on floor.*
The desperate desire to create vs the oh so constant sleepiness plaguing my every action