#chronic fatigue syndrome
When you are feeling low or can’t decide on something- force yourself to smile or laugh
The brain can’t be in two states at once so it immediately responds by assuming it’s happy.
Even if you change state from stress, anxiety, depression, overwhelm for a second, that’s enough to create a break in the neural pathway so that you can choose something else.
Small steps over time can help reduce your load
Choose to be aware and go from there
Most of all be kind to yourself while you are healing x
I didn’t know feeling like that wasn’t normal, I just though I was broken, like I wasn’t enough
I thought maybe if I just studied more, put myself out there, tried harder to fit in, that things would change.
I didn’t know that the fatigue wasn’t normal
The pain wasn’t normal
The dizziness and blackouts were not normal
Until I did.
And then I was dismissed so much that I really felt abnormal.
There were so many signs that my health was declining
Yet instead of realising that something serious was happening, I blamed myself for not trying hard enough for
Not being good enough
Do you do things physically struggling, miserable with post exertional malaise and push through or do you wait until you feel better so that you can really appreciate what you are doing/seeing??
But what if this is as good as it gets?
A long life of being house and bedbound with chronic illness
Or
A shorter life filled with no pain and ease?
Life is
Beautiful
And
Terrible
And
Wonderful
And
Horrible
And
All I know is thats just Hows it’s always been
And
I think that’s just how it’s meant to be
Shout out to the people who disappear when the are not well and don’t broadcast it to everyone who will listen so nobody actually knows that you are going through a tough time
Not everyone projects or need connection at that time but you do need to know that people care for you even if you are not actively seeking it.
Keep cocooning if that’s working for you
Come out when you are ready
You are seen and cared for
Lots of love xxxx
When will we learn that self care isn’t optional
It’s vital
Me *pre-diagnosis*: something is wrong, I’m in a lot of pain and my ankle is unstable
Doctor: It’s all in your head. You need to see a therapist to talk about your issues
*gets diagnosed with ehlers-danlos syndrome*
Me:
Some days, I hate who I am. I hate my disability.
But most days, I have learned to love myself for everything I am…
And I hope you do too ❤️
We feel like we have to project this image of disabled and chronically ill people being so brave. Like they’re such heroes because of everything they go through without complaining. And it’s true that we’re cool, but sometimes I’m sick of it. Sometimes I don’t want to be seen as someone brave or tough, even by myself. I cried for hours today because the pain just got so bad, and afterwards I found myself apologising to my family. Screw that. Why was that my first reaction? I want it to be okay for me to have days when I’ve had enough of it, to just cry and be sad and angry and frustrated because it’s not bloody fair. To not constantly worry that I’m a burden to everyone around me. Sure, I like making people smile, I think it’s good to be sunshine when you can’t find any, but I’m sick of insisting it’s not raining. I like to inspire people and do good where I can, but I am not your inspiration. That’s not my sole purpose. I didn’t choose this. I don’t owe it to anyone to turn this into some kind of origin story. Some days I just need to frickin survive and know it’s ok to not be ok and cry without apologising for it and be mad without feeling guilty because this is not my fault
Be thankful for today and love laugh and love , for in one second your entire life could be turned inside out and be unlike you know it so much so that you will loose parts of yourself and the little things that you gave no thought to and took for granted will be what you miss the most .
#CRPS.
Chronic pain problems •
My life in nutshell.
Chronic pain problems •
My pain chart comes in 3….
- Tolerable
- Intolerable
- Shoot me .
Chronic pain problems •
Having #CRPS is hard enough but being judged dismissed or doubted is heartbreaking.
Chronic pain problems •
“It’s not because I don’t care, am not interested or don’t want to spend time with you [as long to] I’m exhausted…running on empty, and it’s impossible to pour from an empty cup…I still love you. I still care.” What I Need You to Know When I Don’t Reply
Chronic pain problems •
When you do a amazing heartfelt post and it doesn’t post and then you can’t remember everything you wrote and you’re in too much pain to recreate
Chronic pain problems.
When tradies say they will be there between 8-9 pushing 10 and still not here angry 5 mins sleep in the morning is worth luquid gold especially when it’s taken me most the night to get to sleep.
NO COURTESY!
Chronic pain problems •
“My body is once again failing me… I have the motivation and determination to achieve awesome things but I’m trapped in a body that will not allow me to… Many people with #chronicillness will relate to this… I just wanted to say #YouAreNotAlone.”
Chronic pain problems •
To all my fellow #warriors #fighters .
Chronic pain problems •
