#autoimmune
Nut allergies?
Try blending tigernut flour with coconut oil for a delicious nut-free nut spread replacement!
(Remember, acne can be a sign of food intolerances!)
Hello everyone! Having a medical condition with varying symptoms can make it really difficult to know when a new or worsening symptom should be something to be concerned about.
It’s so hard when doctors have not been listening to you for years to not feel like you’re just going to be fobbed off again.
There’s also only so many times that you can listen to a doctor telling you your results are completely fine when you feel really awful
When your immune system is so shot that you only just got over being sick….and you’re sick again.
I just got glutened. This is terrible. Fml
Anyone here have Hashimotos with fibro myalgia, can anyone describe their symptoms and what the pain is like?
Having to sharpie the words “take meds” on my water bottle that goes everywhere with me, because I just never remember.
Getting super sore joints at the moment because it’s so cold here.
You know it’s bad when it hurts to walk because of your toes.
I’ll have weeks where my brain will function normally, hardly any fogging or silly mistakes but then every now and again I suffer really badly. I find it hard to comprehend things or understand, I forget words, I misplace things and make stupid mistakes that I regret instantly. And it’s the most frustrating thing because I know I can be better, I know I’m smarter than how I’m acting but I’m once in a while trapped with this brain that is going slower than usual. It’s like I don’t think or understand things like I used to anymore.
I got a tattoo today for my autoimmune disease that I suffer from . Fibromyalgia
Just going to whine about something personal for a minute here -
I am So. Tired. of having these tissue expanders in. I did not expect - at all - to be on the surgery waiting list for 8+ months following the double mastectomy last year. Sure, relatively speaking that isn’t a great deal of time. But I also feel like I’ve had about a grand total of two nights of decent sleep in the last 8+ months because I’m so bloody uncomfortable 24/7. And the tissue expanders are just a bitch piled on top of a mountain of absolute bitches of chronic health issues. I’m so tired of being uncomfortable and in pain 24/7. Doctors are generally useless and I’m tired of hospitals and waiting rooms. So bloody tired of it all. Especially tired of the fact that Covid has meant they’re not currently booking elective surgeries so the implant swap surgery is some indefinite time months ahead in the future.
The only thing I can do is endure a little longer and try and be as well and content otherwise as I can.
Making a concerted effort to compartmentalise doesn’t stop days like today, though, where I just hate having a body, especially one that hurts and feels sick in some way nearly 24/7.
The only two pieces of advice I can offer anyone in a similar situation is:
- you’ve probably heard the phrase “pain is inevitable, suffering is optional.” To a large extent this is very true. We have more control over the degree of suffering than we realise. Chronic health issues might mean I’m in some level of pain 24/7, but whether I suffer from that 24/7 is the result of a series of choices I can make for myself.
- Focus on the days or moments when you’re not in pain. We spend all this time thinking I’m in pain, everything hurts, and often don’t spend time appreciating the bliss and relaxation that comes with not being in pain. Those are good days. Take a moment to bask in those moments and acknowledge the exist.
If anyone is wondering what might have brought my ability to feel joy back, there are a couple different potential things that could’ve done it. It’s my brother’s graduation so a lot is happening today. I increased my Wellbutrin dose a few weeks ago. I started taking Sulfasalazine about two days ago to try to treat a potentially autoinflammatory condition (Yao syndrome) that may be causing my daily fevers. It would be interesting if the anhedonia is inflammatory. I also restarted Plaquenil for autoimmunity about a month ago. I’ve never been on this dose of Wellbutrin before. I was on 100 mg (plus Prozac) before I stopped taking it, and anhedonia set in, and that was all soon after the fevers developed. I restarted Prozac maybe six months ago. I increased Wellbutrin maybe a month ago. Personally, I hope it’s the Sulfasalazine because that may indicate that my condition is improving. It could be any of these things- I’ll let you know if I figure any of this out!